Story by Loris Jegen

Loris ist sehr unternehmenslustig, er liebt es auf Spielplätzen zu klettern, ins Schwimmbad zu gehen und dabei ins Wasser zu springen. Wenn er der Mama beim Kochen helfen kann ist er glücklich.


Loris is very adventurous, he likes to climb on playgrounds, to go to the swimming pool and to jump into the water. He is very happy when he can help his mom cooking.

Story by Kevin Friar

My name is Kevin Friar and I am 15 years old and am the middle child of a older sister and younger brother and currently attend school at Forest Hills Central High. If I could change something in the world it would probably be the price of a car and conversion. If I could invite three people to dinner it would be Miguel Cabrera, Jackie Robinson and Yonis Cespedes. My day is a success when my back does not hurt.

Story by Colin Werth

My name is Colin Werth and I am a 20 year old with Duchenne Muscular Dystrophy. I live in Virginia with my parents, younger sister Gwen, and dog Gigi. I recently graduated from Community College with a degree in Information Technology and I am currently looking for a job as a computer support specialist. My main interests include trains and traveling; I have traveled all over the world and been on trains in many different countries. I have included a picture of me during our trip to New Zealand in December 2013. My favorite experience was my trip to Japan because I enjoyed learning all about the Japanese culture. I was also able to ride on many trains including the high speed bullet train. My dream is to take a trip to Europe to ride a train through the Alps in Switzerland and Austria. If I could change the world, I would get rid of all sickness and disease including all forms of Muscular Dystrophy. There is too much sickness around the world and getting rid of it will make the world a better place. Many promising studies are out there to improve the lives of those with Muscular Dystrophy and many other terrible diseases. I help with as many medical studies as I can because I know they will possibly allow current and future generations of those with Duchenne to live happier, healthier lives. With all of the advancement in research in recent years I know that someday soon we will end Duchenne!
If I could have three people to dinner I would have Steve Jobs, Bill Gates, and Stephen Hawking because I am fascinated by anything dealing with science and technology. I would love to hear what these three innovators would have to say. My day is a success when I make new friends and have a laugh because I know friendships make memories that last a lifetime and laughter is the best medicine. My favorite person to have around me is my grandfather because he is very supportive of me and has many great stories to tell about his life and important events in history.

Story by Jezreel Govender

I am Jezreel Govender. I am 13 years old. I live with my mom, dad and my sister, Alenora in Phoenix, South Africa. I was diagnosed with Duchenne’s Muscular Dystrophy at the age of 7 and started using a wheelchair when I was 10 years old. I am of the Christian faith and believe in miracles. I have two dogs that I love dearly. My house is my haven and I feel free to use my motorised wheelchair sometimes like a racing track. I love all of God’s creation from the mountains to the oceans, sun, moon, stars, planets, animals and the list goes on. If I could change anything in the world, it would be for everybody in the world to love one another and live in harmony. If I could invite any three people to dinner would be Lorraine my aunt who has died, loved her food, Paul Walker because he was too fast and furious and my sister who is my friend. My favourite experience is when my family and I spent a long week-end at the Springbok Lodge. We bonded with nature and enjoyed seeing all the different animals, from cheetahs, to lions, elephants, buffaloes and zebras and not forgetting my favourite gemsbuck (large antelope). An experience I will never forget. My most treasured memories are of the ones when I was walking and doing things by myself. Apart from breakfast, lunch and supper and the nibbles in between, most of my day is spent, watching television mainly National Geographic and Animal Planet. I read and love bible studies. Drawing is my passion. I am very creative with building blocks. Time is set aside for sister and brother bonding, playing board games and chatting. On a daily basis my mom does my physiotherapy before retiring to bed. My mom is my most favourite person to have around. My day is a success when Jesus gives me the strength to live another day. My dream is to walk again.

Story by Stan Eshuis

Hallo, ik ben Stan. Ik ben 4 jaar. Ik heb een zus en een vader en moeder. We wonen in Nederland, in een nieuw huis. We wonen hier nog niet zo heel lang. Maar ik vind het hier heel leuk. Mijn school is vlakbij, ik kan lopend naar school. Daar speel ik graag met mijn vriendjes. Dat vind ik heel gezellig. Ook vind ik het heel leuk om te fietsen. Dan zit ik in de bakfiets en gaan mijn moeder of vader heel hard. Dan voel ik de wind door mijn haren en ga ik lekker hard zingen.


Hello, I am Stan. I am 4 years old. I have a sister and a father and mother. We live in the Netherlands, in a new home. We came to live here not so long ago. But I like it here a lot. My school is close by and I can walk to school. I like to play with my friends. I enjoy spending time together. I also like to bike. Then I am in front of the carry-on bike and my mother or father go very fast. Then I feel the wind in my hair and I will sing very loud.

Story by Archie, George & Isaac

Hello our names are Archie, aged 9 and George & Isaac, aged 5 and we are three brothers from Ireland who have DMD. We love each other very much and love life. We have had a wonderful summer; we were in the UK for two weeks and it was great fun. We went to Lego land and Poultons Park and the sea Side – it was brilliant.

We are very lucky to live in an amazing community in the west of Ireland who are doing everything they can to help us raise awareness of DMD. We are hoping that a medicine can soon be found that will help every  child and adult living with the Disease.

Archie: I want my muscles to work properly as when I grow up I want to play Rugby for Ireland and be a drummer in a rock band.

George: I want the doctors to find a medicine for my silly muscles because when I grow up I want to be a Chef.

Isaac: My muscles are too slow! I want to run faster and faster! When I grow up I want to be a Bin Man!

Story by Beschi Flaviu Florin

Numele meu este Beschi Flaviu Florin.Am 6 ani si sunt din Cluj,Romania.Stiu ca sunt persoane care viseaza sa zboare,sa urce Everestul ,sa paseasca pe Luna…Singurul meu vis este sa fiu ca si restul copiilor de langa mine.Am un singur vis si ma gandesc mereu la el..se numeste “speranta”.Daca as putea sa schimb ceva in lumea asta ar fii sa opresc timpul,Cel mai mare cosmar al meu este timpul care trece incet pe langa mine.


My name is Beschi Flaviu Florin. I am 6 years old and I live in Cluj, Romania. know that there are people who dream to fly, to climb the Everest, to walk on the moon….my only dream is to be like other children. I have one dream and I always think of it… it is called “hope”. If I could, I would stop time. My worst nightmare is time which is passing by slowly.

Story by Franco Augustín Torrilla

Hola! Me llamo Franco Agustín Torrilla, cumplí 5 años en Abril, naci en la ciudad de Mar del Plata, provincia de Buenos Aires, Argentina hace dos años me mude con mis padres a la ciudad de Paraná provincia de Entre Ríos. Vivo con mis papás en el fondo de la casa de mis abuelos maternos. Todas las mañanas voy al jardín y por las tardes hago kinesiología, terapia ocupacional y fonoaudiología.

Las tardes de los martes y jueves son mis preferidas porque hago natación; en el agua me siento un “pececito” como me dicen los profesores. Desde febrero soy uno de los integrantes más pequeños de la escuela de natación adaptada “Chapuzón”, junto a mis compañeros y profes ya participe de dos torneos. Me encanta bailar… y también me gusta mucho pintar, para mi último cumpleaños mi madrina me regalo un atril, muchos pinceles de distintos tamaños, hojas y temperas, me gusta pintar escuchando música. Como naci en Mar del Plata, que es una ciudad balnearia, y crecí ahí hasta los tres años me gusta mucho jugar en la arena y meterme al mar, cuando podemos nos hacemos una escapadita con mis papis. Mi sueño es conocer Brasil.


Hello! My name is Franco Agustín Torrilla, I turned five in April. I was born in the city of Mar del Plata, Buenos Aires, Argentina. Two years ago I moved with my parents to the city of Parana in the province of Entre Rios. I live with my parents in the back of my grandparents house. Every morning I go to the garden and in the evenings I do kinesiology, occupational therapy and speech therapy. 

Tuesday and Thursday afternoons are my favorites because I swim; in the water I feel a “little fish” as my teachers are saying. Since February I’m one of the youngest members of the adapted swimming school “Dip”, together with my classmates and teachers I already participated in two tournaments. I love to dance … and I also like painting, for my last birthday my godmother gave me an easel, different sizes of brushes, leaves and temperas, I like to listen to music while I am painting. As I was born in Mar del Plata, a seaside resort, and lived there the first three years of my life, I really like to play on the beach and to swim in the sea. When we can we go on a short trip with my parents. My dream is to get to know Brazil.

Story by Stavros

ΟΝΟΜΑΖΟΜΑΙ ΣΤΑΥΡΟΣ  , ΕΙΜΑΙ ΑΠΟ ΤΗΝ ΕΛΛΑΔΑ ΚΑΙ ΕΙΜΑΙ 7 ΧΡΟΝΩΝ. ΛΑΤΡΕΥΩ ΟΛΑ ΤΑ ΖΩΑΚΙΑ ΚΑΙ ΕΧΩ <<ΚΟΛΛΗΜΑ>>ΜΕ ΤΟΥΣ ΔΕΙΝΟΣΑΥΡΟΥΣ! ΜΟΥ ΑΡΕΣΕΙ ΝΑ ΚΟΛΥΜΠΑΩ ΣΤΗ ΘΑΛΑΣΣΑ ΜΕ ΤΗΝ ΑΔΕΛΦΗ ΜΟΥ ΚΑΙ ΤΟΝ ΚΑΛΥΤΕΡΟ ΦΙΛΟ ΜΟΥ ΤΟΝ ΕΡΜΗ! ΤΟ ΟΝΕΙΡΟ ΜΟΥ ΕΙΝΑΙ ΝΑ ΕΧΩ ΕΝΑ ΜΕΓΑΛΟ ΣΠΙΤΙ ΜΕ ΠΑΡΑ ΠΟΛΛΑ ΖΩΑΚΙΑ ΚΑΙ ΝΑ ΠΑΙΖΩ ΣΥΝΕΧΕΙΑ ΜΑΖΙ ΤΟΥΣ!


Hi, my name is Stavros, I am from Greece and I’m 7 years old. I love all animals and I am obsessed with dinosaurs. I love swimming with my two sisters and my friend Hermes. My dream is to have a big house with too many animals and continued to play with them.

Story by Jason Winslow

My Name is Jason Winslow and I am 8 years old. I live with my family in the Seychelles. I go to the International School Seychelles and will be going to year 3 after the summer holidays. I like school, swimming at the beach and zip lining. My dream is to go back to Sun City and swim in the Valley of the Waves because it looks like lots of fun and there are so many other things to do. I like to play on my PS4 because I am good at my games. I wish to be even happier because I just want to be happy all the time. I would love to have dinner with Darth Vader, star Trooper and Leia from the Star Wars Movie. My favorite experience was when I got to Dance with the Minions and my best memory is when we got to drive in a Nissan Almera in 2014 because it’s my favourite car. My girlfriend, Jessica, is my favorite person to have around. My day is a success when I have fun at school and play at home