WORLD DUCHENNE AWARENESS DAY 2021
September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and Becker muscular dystrophy around the globe. As every year, we have a special theme that deserves more attention. This year that will be ‘Adult Life & Duchenne’.
ADULT LIFE & DUCHENNE
Over the past decades, life expectancy of individuals affected by Duchenne MD has increased significantly. Adults with Duchenne are not an exception anymore. Adult life with Duchenne comes with new challenges and opportunities, as well as with new medical issues. This World Duchenne Awareness Day, we are globally advocating for young adults and adults with Duchenne to live their life to the fullest.
WORLD DUCHENNE ORGANIZATION
On September 7, the World Duchenne Organization will be hosting an online event. During this event, experts share their stories and experiences surrounding DMD/BMD and adult life. With this, we aim to inspire and empower young adults with Duchenne and their families to think and plan for the future.
Click the picture below to see the official World Duchenne Awareness Day 2021 press release.
In the upcoming weeks, we will be sharing relevant materials and information.
For inquiries, please contact Suzie-Ann Bakker.