Hello our names are Archie, aged 9 and George & Isaac, aged 5 and we are three brothers from Ireland who have DMD. We love each other very much and love life. We have had a wonderful summer; we were in the UK for two weeks and it was great fun. We went to Lego land and Poultons Park and the sea Side – it was brilliant.

We are very lucky to live in an amazing community in the west of Ireland who are doing everything they can to help us raise awareness of DMD. We are hoping that a medicine can soon be found that will help every  child and adult living with the Disease.

Archie: I want my muscles to work properly as when I grow up I want to play Rugby for Ireland and be a drummer in a rock band.

George: I want the doctors to find a medicine for my silly muscles because when I grow up I want to be a Chef.

Isaac: My muscles are too slow! I want to run faster and faster! When I grow up I want to be a Bin Man!