WORLD DUCHENNE AWARENESS DAY 2021
September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and Becker muscular dystrophy around the globe. As every year, we have a special theme that deserves more attention. This year that will be ‘Adult Life & Duchenne’. An online event accessible to everybody was taking place on September 7.
ADULT LIFE & DUCHENNE
Over the past decades, life expectancy of individuals affected by Duchenne MD has increased significantly, and adults with Duchenne are not an exception anymore. Adult life with Duchenne comes with new challenges and opportunities as well as with new medical issues. This World Duchenne Awareness Day, we are globally advocating to create opportunities for young adults and adults with Duchenne to live their lives to the fullest.
WORLD DUCHENNE ORGANIZATION
On September 7, the World Duchenne Organization will be hosting an online event. During this event, experts share their stories and experiences surrounding DMD/BMD and adult life. With this, we aim to inspire and empower young adults with Duchenne and their families to think and plan for the future.
PRESS RELEASE
Click the picture below to see the official World Duchenne Awareness Day 2021 press release. The press release is available in Arabic, Bulgarian, Dutch, Finnish, Greek, Spanish, Polish, Russian, Ukrainian and Vietnamese.
Visit the ‘Download Materials‘ page for more information, visuals and materials to raise awareness.
For inquiries, please contact Suzie-Ann Bakker.
