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World Duchenne Awareness Day
  • What is Duchenne?
    • About Duchenne & Becker
    • A Brief History of Duchenne
    • Diagnosis & life expectancy
  • About the day
    • When is World Duchenne Awareness Day?
    • Friends of WDAD
    • The WDAD story
  • Get involved
    • What you can do
    • Download materials
  • Activities
    • 2022: Women & Duchenne
    • 2021: Adult Life & Duchenne
    • 2020: Duchenne and the Brain
    • 2019: Nutrition in DMD
    • 2018: Standards of Care
    • 2017: Duchenne Dreams
    • 2016: Early Diagnosis
    • 2015: Duchenne Stories
    • 2014: Faces of Duchenne
  • News
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2022 THEME: READ MORE >

One in 5000 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organizations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.

News

09/06/202220/06/2022 worldduchenne News, Women & Duchenne

2022: Women & Duchenne

14/09/202114/09/2021 worldduchenne Adult Life & Duchenne, News

Adult Life & Duchenne online event

10/09/202110/09/2021 worldduchenne Adult Life & Duchenne, News

World Duchenne Awareness Day highlights a year-round effort to improve adult life in Duchenne

07/09/202114/09/2021 worldduchenne Adult Life & Duchenne, News

Consensus Guideline for Adult Duchenne Care

04/09/202104/09/2021 worldduchenne Adult Life & Duchenne, News

A message from Pope Francis for World Duchenne Awareness Day

More Posts→

Standards of Care videos

Categories

  • Adult Life & Duchenne
  • Duchenne and the Brain
  • Duchenne Dreams
  • Duchenne Stories
  • Early Diagnosis
  • Many faces of Duchenne
  • News
  • Nutrition in DMD
  • Standards of Care
  • Women & Duchenne

Introduction to Duchenne Muscular Dystrophy

https://vimeo.com/133337162?loop=0

Themes of previous years

  • Adult Life & Duchenne
  • Duchenne and the Brain
  • Duchenne Dreams
  • Duchenne Stories
  • Early Diagnosis
  • Many faces of Duchenne
  • News
  • Nutrition in DMD
  • Standards of Care
  • Women & Duchenne

Duchenne – A 360 documentary

https://www.youtube.com/watch?v=o28-1rJAu8g