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World Duchenne Awareness Day
  • What is Duchenne?
    • About Duchenne & Becker
    • A Brief History of Duchenne
    • Diagnosis & life expectancy
  • About the day
    • Friends of WDAD
    • The WDAD story
  • Get involved
    • How to join
    • Download materials
  • Activities
    • 2020: Duchenne and the Brain
    • 2019: Nutrition in DMD
    • 2018: Standards of Care
    • 2017: Duchenne Dreams
    • 2016: Early Diagnosis
    • 2015: Duchenne Stories
    • 2014: Faces of Duchenne
  • News
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Theme 2020: Duchenne and the brain

One in 5000 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organisations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.

News

22/09/202022/09/2020 worldduchenne Duchenne and the Brain, News

World Duchenne Awareness Day 2020 recap

07/09/202007/09/2020 worldduchenne Duchenne and the Brain, News

ENMC workshop report: Brain dystrophin in muscular dystrophy

02/09/202004/09/2020 worldduchenne Duchenne and the Brain, News

Join the online program on Duchenne and the Brain

31/08/202002/09/2020 worldduchenne Duchenne and the Brain, News

Online program for brain involvement in Duchenne and Becker muscular dystrophy

27/08/202028/08/2020 worldduchenne Duchenne and the Brain, News

WDAD receives letter of support from Pope Francis

More Posts→

Standards of Care videos

Categories

  • Duchenne and the Brain
  • Duchenne Dreams
  • Duchenne Stories
  • Early Diagnosis
  • Many faces of Duchenne
  • News
  • Nutrition in DMD
  • Standards of Care

Introduction to Duchenne Muscular Dystrophy

https://vimeo.com/133337162?loop=0

Themes of previous years

  • Duchenne and the Brain
  • Duchenne Dreams
  • Duchenne Stories
  • Early Diagnosis
  • Many faces of Duchenne
  • News
  • Nutrition in DMD
  • Standards of Care

Duchenne – A 360 documentary

https://www.youtube.com/watch?v=o28-1rJAu8g