WORLD DUCHENNE AWARENESS DAY 2022
September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and Becker muscular dystrophy around the globe. As every year, we have a special theme that deserves more attention. This year that will be ‘Women & Duchenne‘.
An educational event accessible to everybody will take place on September 7. More information will be available soon.
WOMEN & DUCHENNE
By creating specific educational materials World Duchenne Organization will highlight all the aspects connected with Duchenne and the female world:
- Carriers: genetic and clinical aspects
- Care considerations for female carriers
- Mothers as primary caregiver
- Girls living with Duchenne
- Spouses and girlfriends
- Female family member network of support
- Women in science
- Female international advocacy leaders
WORLD DUCHENNE ORGANIZATION
On September 7, the World Duchenne Organization will be hosting an online event. During this event, experts share their stories and experiences surrounding women and girls in the field of DMD/BMD.
Click the picture below to see the official World Duchenne Awareness Day 2022 press release.
More materials will be published soon.
For inquiries, please contact Suzie-Ann Bakker.