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World Duchenne Awareness Day
  • What is Duchenne?
    • About Duchenne & Becker
    • A Brief History of Duchenne
    • Diagnosis & life expectancy
  • About the day
    • When is World Duchenne Awareness Day
    • Friends of WDAD
    • The WDAD story
  • What you can do
    • Download WDAD materials
    • Illuminate a landmark
    • Share your story
  • Themes
    • 2022: Women & Duchenne
    • 2021: Adult Life & Duchenne
    • 2020: Duchenne and the Brain
    • 2019: Nutrition in DMD
    • 2018: Standards of Care
    • 2017: Duchenne Dreams
    • 2016: Early Diagnosis
    • 2015: Duchenne Stories
    • 2014: Faces of Duchenne
  • News
  • Contact

Friends of WDAD

Algeria

ASMNM

Argentina

Asociación Distrofia Muscular para las Enfermedades Neuromusculares

Australia

Fight Duchenne Foundation

Muscular Dystrophy Queensland

Save Our Sons

Belgium

DPP Belgium

Little O against Duchenne

Spierziekten Vlaanderen

Brazil

AACD Pernambuco

Acadim

Aliança Distrofia Brasil (ADB)

OAPD

OBADIN

Canada

Jesses Journey

La Force DMD

Muscular Dystrophy Canada

Stand for Duchenne Canada

Chile

DSG-Duchenne

Agrupacion Duchenne Chile

China

China DMD

Colombia

Asociacion Colombiana para la distrofia muscular

Costa Rica

Asociacion De Pacientes Con Distrofias Musculares De Costa Rica

Cyprus

MDA Cyprus

Czech Republic

End Duchenne

Parent Project Czech Republic

Denmark

Muskelsvindfonden

Egypt

Egyptian society of Friends of Genetically Disprivileged Families

France

AFM-Téléthon

Finland

DMD Finland

Lihastautiliitto

Greece

Patients MDA Hellas

India

Dystrophy Annihilation Research Trust

MD India

MDCRC India

Ireland

Duchenne Ireland

Join Our Boys

Muscular Dystrophy Ireland

Israel

Association Duchenne Israel

Little steps

Italy

Abilmente Onlus

Altrodomani Onlus

Centro NeMo (NeuroMuscular Omnicentre)

Duchenne Parent Project Onlus Italia

Fondazione Telethon

UILDM

Kenya

Muscular Dystrophy Society Kenya

Korea

MDA Korea

Lebanon

Land for Hope

Lithuania

Justas Charity Fund

Malaysia

Malaysian Rare Disorders Society

Yayasan Duchenne Selatan

Mexico

Asociación de Distrofia Muscular de Occidente A.C.

Enlace Distrofia Muscular Duchenne Becker, A.C.

SMDM

Netherlands

Duchenne Parent Project the Netherlands

Vereniging Spierziekten Nederland

New Zealand

Muscular Dystrophy New Zealand

Norway

Foreningen for Muskelsyke

Poland

Parent Project MD Poland

Portugal

Associação Portuguesa de Doentes Neuromusculares (APN)

Romania

Parent Project Romania

Russia

NPO Duchenne Family

Serbia

DMD Srbija

Singapore

Muscular Dystrophy Association Singapore

Slovakia

OMDVSR

Styria Musketieri 

Slovenia

Društvo distrofikov Slovenije

European Alliance of NMD Associations

Spain

Duchenne Parent Project Spain

Duchenne Somriures Valents

Sri Lanka

Parent Project MD Sri Lanka

Sweden

SMDF

DBMD

Switzerland

Progena Foundation

Ukraine

NGO Duchenne Ukraine

Mio Life

United Arab Emirates

Yes2MyGiving initiative

United Kingdom

Action Duchenne

Alex’s Wish

Caring for Connor

DMD Pathfinders

Duchenne Now

Duchenne Research Fund

Duchenne UK

Friends Of Alec Syphas

Harrison’s Fund

Joining Jack

Muscular Dystrophy UK

United States

Coalition Duchenne

Cure Duchenne

Hope for Javier

JB’s Keys to DMD

Michael’s Cause

Muscular Dystrophy Association

Pietro’s Fight

PPMD USA

RaceMD

Ryan’s Quest

The Akari Foundation

The Hope for Gus Foundation

The Jett Foundation

The Zack Heger Foundation

Two Smiles One Hope

 

Standards of Care videos

Categories

  • Adult Life & Duchenne
  • Duchenne and the Brain
  • Duchenne Dreams
  • Duchenne Stories
  • Early Diagnosis
  • Many faces of Duchenne
  • News
  • Nutrition in DMD
  • Standards of Care
  • Women & Duchenne

Introduction to Duchenne Muscular Dystrophy

https://vimeo.com/133337162?loop=0

Themes of previous years

  • Adult Life & Duchenne
  • Duchenne and the Brain
  • Duchenne Dreams
  • Duchenne Stories
  • Early Diagnosis
  • Many faces of Duchenne
  • News
  • Nutrition in DMD
  • Standards of Care
  • Women & Duchenne

Duchenne – A 360 documentary

https://www.youtube.com/watch?v=o28-1rJAu8g