DUCHENNE AND THE BRAIN
September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and Becker muscular dystrophy around the globe. As every year, we have a special theme that deserves more attention. This year that will be Duchenne and the brain.
The same protein that is missing in the muscle causing muscle breakdown, is also missing in the brain. This is causing problems such as learning difficulties or behavioural issues such as ADD, ADHD, OCD and autism. For many families in day to day life, this is causing more stress and worries than the physical problems.
What we plea for is early testing, appropriate testing, more research and better care on this aspect of the disease. This is really needed in order to have everyone reach their full potential. Join us in this activity and see the materials, and help spread the word around the world!