Tag: WDAD 2015

No passer by can miss to smile back at Vignesh who is a very cheerful boy. He goes to school and is in his 9^th grade now. Vignesh visits the rehab centre every week and says he loves to miss school and be with us for a change. He feels being with us is a very positive moment and it energizes him a lot during the rehab sessions. Amidst all this, Vignesh has his own ways of pass time where he feels really elated. He shared one of his family outings with us. It was to a hilltop family deity temple which he cherished. The drive on the winding roads, the loverly sceneries and the company of his family was so amazing that he cannot forget it he says. It is not because of the beauty of the hill top temple alone, but visiting the temple gives him a sense of joy he added. Especially a trip filled with fun activities and his little brother who kept entertaining him all the way made it even more interesting. Well, he can’t keep travelling always, he has his own ways of entertainment. Carrom and chess keeps him occupied and is most sought after he stated. He said he would love to grow up into a mechanical engineer and invent lot of mechanical items which will be pollution free and not consuming electricity much. His intention is to enter college first and then come out with flying colours as an engineering graduate. He reads a lot and loves to solve puzzles. He says his room is full of books and most of them would focus on puzzles and games. Vignesh has a very positive attitude towards life. He tries his hands on cooking too at times. He loves to be on it for long hours serving his family with delicious items made of mushroom as he loves cooking on mushrooms. Vignesh has invited the rehab centre team home to taste his culinary expertise. Looking forward to meet him at his home.

Mi nombre es Juan José Villalvazo Rojas, me gusta que me digan “JuanJo”. Soy muy alegre, me gusta hacer fiestas con mis amigos y divertirme con ellos, también me gusta decir lo que pienso o siento aunque eso muchas veces no lesguste a las demás personas. Mi familia está integrada por papá, mamá, mi abuela y mi hermano menor Arturito, con él peleomucho pero nos queremos y escuchamos. Mi mamá es muy buena conmigo, aunque también peleamos constantemente pero creo que es porque somos muy iguales jejeje!! Mi papá es de gran apoyo para mi, me gusta platicar con él, es muy paciente y buena persona, al igual que mi abuela. Mis amigos también son muy importantes para mi, son como mi segunda familia.Me gusta la música de “metal”, mi grupo favorito es Epica. Soy corista de los Big Boy ́s grupo que formamos chicos con laenfermedad de distrofia muscular. Los videojuegos me encantan, también las películas de Harry Potter y el programa de Dragon Ball Z. Me gusta el deporte, sobre todo el futbol, también me gusta ver ánime. Mi comida favorita es chorizo con papas.Mi sueño, es conocer la ciudad de Manchester.

My name is Juan Jose Villalvazo Rojas and they call me “JuanJo”. I am easy going and I like toorganize parties with my friends and have fun with them. I say what I think or feel although manytimes people do not like it at all. My family is Dad, Mom, Granny and my younger brother, Lil’ Arthur, we fight a lot but we love andlisten each other. My Mom is so kind with me although we also fight constantly but I think it is because we are sosimilar, LOL; my Dad it is a great support to me, we talk a lot, he is so patient and good person like my Granny is.I consider my friends are so important to me; they are my second family. I like Music, Heavy Metal the genre and my favorite bandis Epica. I am part of “Big Boys”, a band integrated by boys with muscular dystrophy disease. I love videogames, Harry Potter ́s movies and Dragon BallZ. I like sports, especially Soccer. I also like Anime. My favorite dish is sausage with potatoes. My dream, visit the city of Manchester.

Mi nombre es Sergio Alvarado García, tengo 14 años, vengo a la Asociación todos los martes, recibo terapia física y pulmonar, también voy al catecismo y me dan clases de inglés. Soy muy alegre, me gusta hacer amigos. Tengo dos hermanos uno deellos también tiene distrofia muscular, su nombre es Juan Carlos, con mis dos hermanos me la llevo muy bien. Mi principal ayuda es mi mamá, ella nos apoya en todo lo que necesitamos, es muy trabajadora y es buena persona, cuando crezca quiero ayudar a mi familia en todo lo que se pueda. Me gusta mucho platicar con toda mi familia pero más con mi mamá. Me gusta la música, el rock alternativo principalmente, mi grupo favorito es “ColdPlay”, No me gusta la banda. Me gusta ver la televisión, las caricaturas “Hora de aventura” y documentales de animales, también me gusta jugar algunos juegos en mi celular. Mi sueño, es conocer Grecia y Egipto. Me encanta leer sobre historias antiguas y mitos. Disfruto mucho de ir al cine. Mis animales favoritos son los perros y gatos. Mi comida favorita es la pizza, las hamburguesas y los hot-dog, también me gusta comer brócoli con limón y chile.Mis sueños son poder tomar clases de dibujo profesional y ser un distribuidor de coches de la marca FORD.

My name is Sergio Alvarado García, I am 14, I come to ADMO A.C every Tuesday where I receive aphysical and pulmonary therapies. I assist to catechism, and take English classes. I am happy personand like to make friends. I have two brother and one of them, has a muscular dystrophy as well, hisname is Juan Carlos. The three of us take it good. My main help is my Mom, she supports us in anything we need, is a hard-worker and a good person, when I grow up I want to help all the family in all the possible ways. I like to talk with my family,especially with Mom. I like music, mainly alternative rock and Coldplay is my favorite band. I don’t like Sinaloan Music(banda). I like to watch TV, “adventure time” and animal documentaries are my favorites, and also play gamesin my mobile. My dream is to visit Greece and Egypt. I love to read about ancient history and myths. I enjoy going tothe movies. My favorites pets are dogs and cats and my favorite food are pizza, hamburger and hotdog but also broccoli (with lemon and hot pepper). My dreams are to learn professional drawing and being a car dealer from FORD.

•ספר לנו על עצמך :
אני סברי קעדאן מבאקה אלגרבייה בן 26 יש לי מחלת ניוון שרירים מסוג ״בקר״ עושה ספורט ומשחק טניס שולחן
•מה החלום שלך :
להגיע לאולמפיאדה
•מה אתה רוצה לעשות בסוף שבוע ?
לצאת לטייל
•אם היית יכול לשנות משהו בעולם , מה היית משנה ?
את הבריאות , שכל העולם יהיה בריא .
•תאר את היום שלך ?
מצויין
היום שלי מוצלח כאשר אני יוצא לעשות ספורט ולשחק טניס שולחן , אני מרגיש שעשיתי משהו מיוחד היום

My name is Sabri Qa’adan from Baka al Garbia, Israel.I’m 26 year old with Duchenne / Becker muscular dystrophy, which means I have a milder form. I like doing sports and playing table tennis. My dream is to reach the Olympics games. At the weekend I like to go for a walk outside. My day would be successful when I go out to do sports and play table tennis, I feel that I did something special today. If I could change something in the world, I would like to have a healthy world.

Je suis Mohamed, j’ai 10 ans et je vis a m’sila dans l’est de l’Algérie. Je vais a l’école en compagnie de mon père parce que j’ai des difficultés a me déplacé tous seule, j’aime la nature et la mer. Mon plus grand souhait c’est que les chercheurs trouve un traitement pour guérir les malades du monde entier qui ont la Dystrophie Musculaire de Duchenne.

I’m Mohamed, I am 10 years old and I live in m’sila in easthern Algéria. My dad goes to school with me, because I have difficulties moving by myself. I love nature and the sea. My greatest wish is that researchers find a cure for patients worldwide who have Duchenne muscular dystrophy.

Mi chiamo Gianmario Fortunato ho 34 anni sono della provincia di Brescia. Ho la DMD diagnosticata all’ età di 6 anni, ho camminato fino a 11 anni. Ho due grandi sogni, il primo è una vita senza DMD se non per me almeno per i bambini che la hanno e per quelli che nasceranno, il secondo è quello di trovare l’amore puro, avere figli, una vita pseudo normale. Tutta la mia infanzia è stata meravigliosa nonostante la dmd e le esperienze preferite che ho vissuto, sono state avere fatto un giro in elicottero ed su una Ferrari F40 a 200 km/h, due esperienze con andrenalina pura. La mia visione delle cose mi porta a pensare che se potessi cambiare qualcosa nel mondo, cambierei la sensibilità delle persone. Vorrei un mondo come una volta, come quello dei nostri nonni, dove si viveva con le porte aperte e se un vicino aveva bisogno lo aiutavi . Vorrei un mondo dove la gente che non fa nulla per nessuno e parla male e critica per invidia, capisse il vero senso del silenzio della non critica ma solo collaborazione .. Vorrei un mondo con meno gente arrabbiata perché la vita è una sola!

My name is Gianmario Fortunato; I’m 34 and I live near Brescia, in Northern Italy. I was diagnosed with DMD when I was 6 and I was able to walk until the age of 11. My dream would be a life without DMD; if not for me, at least for little children who are being diagnosed now and for the ones still to be born. My other dream is to find my true love, to have kids, a pseudo-normal life. My childhood was amazing, in spite of my DMD and my favorite experiences in my life have been had a helicopter tour, and another time I had the chance to ride a Ferrari F40 at 240 km/hour – these were experiences filled with pure adrenaline. My vision of life leads me to think that if I could change something in the world, I would like to change people’s sensitivity. I’d like to live in a world more similar to our grandparents’ one, when people used to leave their doors open and to help one’s neighbor if he was in need. I’d like to live in a world in which people who usually don’t help others and criticize those who do that (out of envy for them) could understand the value of silence and collaboration and stop badmouthing other people. I would like people to live less angrily, because you only live once!

Shyam has a passion for animals, especially pets. He loves dogs, cats, pups, kittens and of course birds. Shyam cannot pass by without hugging a cute kitten which crosses his way. Well, he says, it is not the kittens and puppies alone that fascinate him, but it is in general the animal kingdom. He feels they have equal rights to live in this world and must be honoured for what they are. They should never be hurt or left uncared. They haves lives too like us …says Shayam. Moving from the pets he goes on to the ferocious wild jungle inhabitants too. He says the tigers are nothing less than our best friends. It is as important as our best friends in the school or neighborhood. It is so alarming that they are dwindling in number and there is no one to pause for a moment to think about them. The majestic white tigers of the Sunderbans in India are a pride to the country itself. They are too less in number too. They are hardly visible these days. Shyam very emotionally touching his heart asks us … do you know why this is happening? The reason is quite simple. It is because of the scarcity of trees and forests which is due to deforestation and scarcity of water bodies. It is our duty to take care of these loving animals. The more love we show them, the more attracted they are towards us. So let us start loving animals. Please do not kill animals, they are close to my heart and soon make them your friends and they will be close to your heart too.

As all other boys, I love to play and jump and be a tom boy, though not much these days as my activities are restricted, but the moment I see my friends over the fence or with a cricket bat, I intend to pick up one start my play. It is all the confidence that the people around me have given till today. Without pets or animals my only company and passion is playing outdoors. I wish each day is a Sunday and I can be happy playing all day with my friends and cherish those memories all my life. I just love what I am doing…. Friends always be happy and do something that you like to make your self happy …. This is the bottomline of Shyam sunder’s heart. Most of the time, Shyam is with his grand mother who best takes care of him and so he includes her as one of his best friends. The picture shows Shyam with his grand mom.

Soy Juan Ángel Olmedo Hernández, tengo 24 años de edad, soy una persona tranquila y amable puedo entablar conversación con cualquier persona. Tengo una familia maravillosa, mi madre es mi principal motor, mi padre en paz descanse era el mejor y siempre me sacaba adelante, me dio todo lo que pudo y aun lo hace cada día pues intercede por mí, tengo 5 hermanas a las que quiero y me quieren mucho, yo soy muy sociable, me gusta mucho la música, mi genero preferido es la banda, le sigue electrónica y después todo los géneros, puedo escuchar de todo, toco el teclado y quiero tocar guitarra, estoy en un grupo llamado Big Boy´s donde los demás integrantes también son parte de ADMO estoy escribiendo 2 canciones una habla de amor otra de superación y un corrido que habla de mi.Soy muy positivo y por las cosas que he vivido soy una persona muy fuerte emocionalmente. Siempre me mantengo activo, dibujo y vendo dibujos, se coser, me gusta inventar cosas, me gusta cantar canciones de banda y una que otra romántica, me gusta salir a pasear a plazas, cines y bares, me fascina jugar FIFA, Xbox, o Play station, en deportes adoro el futbol, le sigue el tenis y futbol americano, mi equipo favorito es el América de México, el Real Madrid de España y el chelsy de Inglaterra, en futbol americano le voy a las águilas de filadelfia. En tenis en las damas me gusta Caroline Whosniaki, y Ana Sharapova, y soy fan de Novak Djokovic.
Me gustan las muchachas, las güeritas, me gusta tomarme fotos con toda muchacha guapa que llego a conocer, y me gusta tratarlas lo mejor que pueda, sacarles platica y conversar se me facilita, me gustan las pelis de acción, me fascinan los autos, la velocidad, las motos, me gustan las bebidas como las piñas coladas, sex on the beach, el vodka, el new mix, vampiros, buchannans, me gusta organizar reuniones para jugar domino o baraja, cotorrear, me gusta conversar con las personas, algunas veces les doy consejos, me gusta comer panditas, gomitas ja, ja, ja, me gusta mucho la arrachera y la cecina, acompañado de un buen puré o cualquier tipo de papa, al ornó o a la francesa, uso mucho el face y whatsapp para platicar con amistades, amigas, amigos, familia. Quiero hacer varias cosas que en mi vida serian muy agradables vivirlas. Poco a poco se que llegaran, y a lo mejor se darán y si no se dan, por lo menos lo intentare. Estas cosas que quiero hacer no son imposibles pero se ocupa apoyo, quisiera ir de antro, ir al estadio azteca y conocer a jugadores del América, subirme a un Lamborghini que es mi auto favorito, pasear en un crusser convertible, subirme a un Camaro, tener un auto de control remoto un lamborghini. Quisiera estudiar algo referente con dibujo. Tengo en mente y quiero realizar unos proyectos que yo cree. Conocer a Maite perrony y a Julion Alvarez. Algún día si Dios me lo permite pretendo casarme en Cancún, je, je, claro encontrar a la afortunada, ja,ja.

My name is Juan Angel Olmedo Hernandez, I´m 24, I describe myself as quiet and kind person and I am sure I could talk with anyone. I have a wonderful family, my mother is my main driver, my father has passed away; he was the best and usually, he drags me out from my solitude and did what he could. I will always keep him in my heart. He still is watching for me from heaven. I have 5 sisters that I love and they do love me back. I am easy-going and I like people and music. First Sinaloan Banda, second techno, and then anything, I can listen all; I play the keybords and want to learn guitar. I have a band, “Big Boys”, and all we are part of ADMO. I am writing some songs, one is about love, other is about the will of encourage and other about me.

I am very positive and by personal experience, emotionally strong; always active I sale my drawings, I like to sing, inventing things, walk, go to the movies and have a drink or two, even know stitching. I play videogames, Xbox or PS, love FIFA15. In sports I follow Soccer, Tennis and Football. My Teams: America (México), Real Madrid (spain) and Chelsea (UK), NFL Philadelphia Eagles. I am fan of Caroline Wozniacki, Maria Sharapova and Novak Djokovic.

I like “güeritas” (blondies), take selfies with all pretty girl I know; I always treat them with respect, chat is easy for me. My favorites are the action movies, I love all about cars, speed, motorcycles; my drinks, “piña colada”, “sex on the beach”, vodka and whisky. I organize poker or domino meetings with friends. Sometimes I gave them my advice. I love gummy bears, meat with mash potato, French Fries. I use a lot Facebook and WhatsApp to maintain contact with family and friends.

I would like to do many things, experience them, and I know I eventually will but if not, I will try. To reach these things I need help. I want to go to a discotheque, visit the “Estadio Azteca”, know the players of my soccer team, America, at Mexico City, ride in my favorite car, Lamborghini, and ride a convertible Camaro and have a RC Car. I want to study something about Draw and Design. I want to reach and develop some projects that I have in mind. I want to know some Mexican artists like Mayte Perrioni, Juilion Alvarez and many more.

Someday, if God bless me and I find the right-one, I will marry her at Cancun. LOL.

Me llamo Gilberto Alcaraz González, tengo 12 años, y tengo dos hermanos que se llaman Carlos y Fátima, somos triates, con mis hermanos me la llevo bien, aunque a veces peleamos mucho. Soy muy ocurrente y divertido me gusta mucho platicar. Uno de mis mejores amigos se llama Sergio, con él juego “carreritas” en nuestras sillas de ruedas eléctricas. Sergio y yo somos beneficiarios de ADMO A.C y asistimos ahí todos los miércoles. Me gusta jugar PSP mis juegos favoritos son de carreras, me gusta mucho ver televisión, las caricaturas como “Un show más”, animal planet. La materia que más me gusta es Ciencias Naturales y odio las matemáticas. Me encantan las quesadillas pero el aguacate no me gusta para nada. También me gusta mucho la música, el género que más me gusta es el rock clásico, mi grupo favorito “The Beatles”. Mi sueño, es ser mostrador de carros en una agencia de Porsche. También me gustaría ser diseñador automotriz, todo lo que tiene que ver con carros me llama la atención. Me gustan mucho los animales, principalmente los animales exóticos. El cine es de mis lugares favoritos para salir, principalmente cuando son películas de acción, también me gusta salir con mi familia, con mis primos y tios, la playa me gusta mucho, quisiera ir más seguido y que pudiera ir toda mi familia.

My name is Gilberto Alcaráz González, I am 12 and have a brother and sister who are Carlos and Fátima, we are triplets. We play most of the time, tough as any brothers we fight sometimes. I am funny and sometimes I am a menace; I like to talk a lot. I have a very good friend, Sergio, which I play races with to see who is faster in ours electric wheelchairs. Sergio and I attend ADMO every Wednesday. I love to play my PSP games, mostly car racing, watch TV, cartoons like “A more show” and Animal Planet. The subject I like most is Natural Science and I hate Math. I like “quesadillas” but avocado is something I don’t like at all. In addition, I enjoy Music, my favorite genre is classic rock, “The Beatles” is my favorite band. My dream is to be a Porsche dealer, also I want to be a car designer, and everything about cars caught my attention. I love animals, especially exotic ones. One of my favorites hobbies is going to the movies, in particular if is an action movie. I like a lot going out with my family, cousins and relatives. Beach is a place where I enjoy going, but I would like to be there more often with all the family.

Hola, me llamo Raymundo, tengo 13 años y tengo distrofia muscular de Duchenne. A veces me pongo triste porque no puedo hacer muchas cosas que me gustan, pero luego se me pasa. Me gustan mucho los videojuegos y las niñas. Soy muy alegre a pesar de mi condición, tengo muchas ganas de vivir y no me doy por vencido. Apoyanos para que haya más dinero para estudiar más esta enfermedad. Somos muchos niños que estamos así.