Today, the official World Duchenne Awareness Day 2021 promo video is launched. This video marks the start of the global awareness raising day on September 7. With the help of many patient organizations throughout the world, the promo video is available in 16 languages. The video shows various portraits of people living with Duchenne in daily life.

Produced by the World Duchenne Organization

The official promo video is initiated and produced by the World Duchenne Organization, and coordinated by Nicoletta Madia. “Words are important. Words can help make a difference. This is the theme that emerges from the video for World Duchenne Awareness Day 2021. The video shows various portraits of people living with Duchenne in daily life. Three words are highlighted that mean a lot to people living with Duchenne MD.”

Duchenne encompasses what it means to live with this pathology and the commitment of research and clinic in this field.

Community includes thousands of people globally committed to changing the quality of life of people living with this disease.

Awareness encompasses the importance of informing about this rare condition globally by reaching the greatest number of people. An objective that is at the center of this day and for which the World Duchenne Organization asks everyone to spread the word.

Raising awareness

The official hashtag for the awareness raising campaign is #spreadtheword. Everyone is encouraged to share this video with their friends and family to raise awareness for Duchenne and Becker muscular dystrophy.

How to share

Nicoletta: “In the previous years, the promo video was displayed on enormous billboards, many social media channels, and screens in hospitals and clinics. Our aim is to achieve this type of global coverage again, so we can truly make an impact. With the connected community we have right now, I’m positive that this will happen.”

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