With World Duchenne Awareness Day approaching, there are so many ways you can get involved in raising awareness on this rare muscle condition. No matter what effort you make, your contribution to raising awareness will help lift off Duchenne Muscular Dystrophy from this world. Here are some tips on how you can bring your light for World Duchenne Awareness Day.

  1. Talk. Use this day to bring up topics or questions you have to open up conversation with family, friends or anyone about Duchenne. This can involve this year’s topic ‘Nutrition & Nutriceuticals in DMD’, but can cover anything that is on your mind. 
  2. Listen. Some Duchenne parents or families don’t want to hear solutions, they just want to be understood. Allow yourself to become a listener and focus on creating mutual understanding to set the path towards meaningful problem solving. 
  3. Learn. Attend a conference, event or fundraiser nearby and support your local Duchenne organisation. This not only brings you fresh knowledge and insights, but also creates a stronger bond with other Duchenne families. 
  4. Donate. Reach out to your patient organisation and ask how you can help. Donate your time, expertise or money and help create a better quality of life for those affected by Duchenne Muscular Dystrophy.
  5. Show. Demonstrate your solidarity with the Duchenne community by taking a picture with a red balloon, and post it on social media with the hashtag #WDAD2019, mentioning @duchenneday.

With these steps in mind, we can build together on a future with better standards of care and quality of life by those affected by Duchenne Muscular Dystrophy. On September 7, let’s hear it for Duchenne and Becker boys, men, girls, carriers, and anyone who is affected by this muscle condition.

World Duchenne Awareness Day 2017 in Mexico