High Patronage of the European Parliament

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In EU countries, any disease affecting fewer than 5 people in 10 000 is considered rare. This number may seem small, but it translates into approximately 246 000 people throughout the EU’s 28 member countries. Most patients suffer from even rarer diseases affecting 1 person in 100 000 or more. It is estimated that today in the EU, 5-8000 distinct rare diseases affect 6-8% of the population – between 27 and 36 million people.

EU effort is focused on:

As an international Duchenne community we are very grateful to the European Parliament for this important recognition and the effort in fighting rare diseases.