Skip to content
World Duchenne Awareness Day
  • What is Duchenne?
    • About Duchenne & Becker
    • A Brief History of Duchenne
    • Diagnosis & life expectancy
  • About the day
    • When is World Duchenne Awareness Day
    • Friends of WDAD
    • The WDAD story
  • What you can do
    • Download WDAD materials
    • Illuminate a landmark
    • Organize an Event or Conference
  • Themes
    • 2025: Family: the heart of care
    • 2024: Raise Your Voice for Duchenne
    • 2023: Duchenne – Breaking Barriers
    • 2022: Women & Duchenne
    • 2021: Adult Life & Duchenne
    • 2020: Duchenne and the Brain
    • 2019: Nutrition in DMD
    • 2018: Standards of Care
    • 2017: Duchenne Dreams
    • 2016: Early Diagnosis
    • 2015: Duchenne Stories
    • 2014: Faces of Duchenne
  • News
  • Contact

News

September 10, 2021September 10, 2021 worldduchenne Adult Life & Duchenne, News

World Duchenne Awareness Day highlights a year-round effort to improve adult life in Duchenne

September 7, 2021September 14, 2021 worldduchenne Adult Life & Duchenne, News

Consensus Guideline for Adult Duchenne Care

September 4, 2021September 4, 2021 worldduchenne Adult Life & Duchenne, News

A message from Pope Francis for World Duchenne Awareness Day

August 31, 2021August 31, 2021 worldduchenne Adult Life & Duchenne, News

#SPREADTHEWORD for World Duchenne Awareness Day

August 20, 2021September 1, 2021 worldduchenne Adult Life & Duchenne, News

Online event on Adult Life & Duchenne

May 7, 2021July 4, 2022 worldduchenne Adult Life & Duchenne, News

2021: Adult Life & Duchenne

September 22, 2020March 22, 2021 worldduchenne Duchenne and the Brain, News

World Duchenne Awareness Day 2020 recap

September 7, 2020March 22, 2021 worldduchenne Duchenne and the Brain, News

ENMC workshop report: Brain dystrophin in muscular dystrophy

September 2, 2020March 22, 2021 worldduchenne Duchenne and the Brain, News

Join the online program on Duchenne and the Brain

August 31, 2020March 22, 2021 worldduchenne Duchenne and the Brain, News

Online program for brain involvement in Duchenne and Becker muscular dystrophy

int(6)
« prev 1 2 3 4 5 6 next »

Standards of Care videos

Categories

  • Adult Life & Duchenne
  • Duchenne and the Brain
  • Duchenne Dreams
  • Duchenne Stories
  • Duchenne: Breaking Barriers
  • Early Diagnosis
  • Family the heart of care
  • Many faces of Duchenne
  • News
  • Nutrition in DMD
  • Raise your Voice for Duchenne
  • Standards of Care
  • Women & Duchenne

Introduction to Duchenne Muscular Dystrophy

https://vimeo.com/133337162?loop=0

Interesting links

  • Adult Life & Duchenne
  • Duchenne and the Brain
  • Duchenne Dreams
  • Duchenne Stories
  • Duchenne: Breaking Barriers
  • Early Diagnosis
  • Family the heart of care
  • Many faces of Duchenne
  • News
  • Nutrition in DMD
  • Raise your Voice for Duchenne
  • Standards of Care
  • Women & Duchenne

Duchenne – A 360 documentary

https://www.youtube.com/watch?v=o28-1rJAu8g