The Website is operated by World Duchenne Organization, a not-for-profit organization, with its registered office at Landjuweel 34, 3905 PG Veenendaal and registered in the Netherlands under the Chamber of Commerce number 30226334 (“WDO”, “We”, “Us” or “Our”).
1. Purpose of our website
The main objective of Our Website is to raise awareness amongst patient organizations, institutions, the general public and decision-makers about people living with dystrophinopathies. This includes people living with Duchenne and Becker muscular dystrophy, as well as carriers. World Duchenne Awareness Day takes place each year on September 7.
The Website provides information in relation to (i) World Duchenne Awareness Day and all of the related events happening around the world, (ii) the history of World Duchenne Awareness Day with information and materials about past educational themes, (iii) people living with dystrophinopathies and (iv) provide materials in several languages to facilitate global awareness raising.
The information is available to any internet users, who choose to access the Website (“Users”) and is in the form of, including but not limited to, texts, pictures, banners, video and audio files (together “Materials”).
2. Accessing our website
The Website and the Materials may be adjusted, modified or completed at any time and without prior announcement or notice. We give no guarantees regarding the function or availability of the Website and the Materials and cannot be held responsible for any malfunctions or temporary (un)availability or for any direct or indirect damage that may arise from your access to or your use of the Website and the Materials.
While, You are responsible for making all arrangements necessary for you to have access to Our Website, please note that Our Website has been designed to adhere closely to accessibility recommendations and guidelines, in particular to allow Users with motor or visual disabilities full access to the content and Materials made available by WDO. If you encounter any difficulties using Our Website, e-mail Us at [email protected]
To the extent permitted by Dutch law, We exclude all conditions, warranties, representations or other terms which may apply to Our Website or any content on it as well as to the Materials, whether express or implied.
We will not be liable to any user for any loss or damage, whether in contract, tort (including negligence), breach of statutory duty, or otherwise, even if foreseeable, arising under or in connection with:
- The use of, or inability to use, Our Website; or
- The use of or reliance on any content displayed on Our Website.
As User, please note that We only provide Our Website for educational and private use. You agree not to use Our Website for any commercial or business purposes, and We have no liability to you for any loss of profit, loss of business, business interruption, or loss of business opportunity.
We will not be liable for any loss or damage caused by a virus, distributed denial-of-service attack, or other technologically harmful material that may infect your computer equipment, computer programs, data or other proprietary material due to your use of Our Website or to your downloading of any Materials on it, or on any website linked to it.
We do guarantee that this Website and the Materials will be secure or free from bugs or viruses. Users are responsible for configuring their information technology, computer programs and platform in order to access Our Website. Users should use their own virus protection software.
Users must not misuse Our Website by knowingly introducing viruses, trojans, worms, logic bombs or other material which is malicious or technologically harmful. Users must not attempt to gain unauthorized access to Our Website, the server on which Our Website is stored or any server, computer or database connected to Our Website. User must not attack Our Website via a denial-of-service attack or a distributed denial-of service attack. We will report any such breach to the relevant law enforcement authorities and We will co-operate with those authorities by disclosing the identity of the users to them. In the event of such a breach, your right to use Our Website will cease immediately.
5. Third party’s website
6. Prohibited uses
If the Website contains online forums, or other message or communication facilities, We are not responsible for the content or quality of contributions by Users. Opinions expressed by Users do not necessarily reflect the opinions of WDO. We maintain that online forums and other message facilities are not replacements for individual counselling, or consultation with a health care professional.
If the Website contains online forums, or other message or communication facilities, Users shall not do any of the following:
- Defame, abuse, harass, stalk, threaten or otherwise violate the legal rights of others;
- Publish, post, distribute or disseminate any defamatory, infringing, obscene, indecent or unlawful material;
- Upload or attach files that contain software of other material protected by intellectual property rights unless the User owns or controls the rights thereto or have received all necessary consents;
- Upload or attach files that contain viruses, corrupted files, or any other similar software or programs that may damage the operation of another’s computer;
- Upload, e-mail, transmit or otherwise make available unsolicited advertising of any goods or services, or conduct or forward surveys, contests, “spam” or chain letters; and
- Promote any commercial product, medicinal product or health service for the purpose of, or resulting in, personal financial gain or act as a representative of a for-profit organization.
We have the right to remove any posting you make on our Website if, in our opinion, your content does not comply with any of the types of conduct listed above. Users specifically acknowledge and agree that We are not liable for any of these conducts of any other User.
7. Intellectual property rights
General – We are the owner or the licensee of all intellectual property rights in the Website and in the Materials published on it. Those works are protected by copyright laws and treaties around the world. All such rights are reserved.
- We allow Users to freely download and reproduce the Materials on Our Website provided that: the User acknowledges the Website as the source of the Materials,
- such an acknowledgement and suitable reference to WDO is made in the copy of the Materials, and
- the User informs third parties that they are subject to and must comply with the Conditions of Use of this Website. This permission is, however, revocable at any time by WDO.
However, reproduction of the Materials, whether in paper or electronic media or other form, is only authorized for personal and non-commercial use and in support of activities related to the World Duchenne Awareness Day, including but not limited to, fundraising activities for your own events and/or organization.
In no circumstance, the User may copy otherwise, republish, lend, post on servers, transmit or redistribute to (mailing) lists this information for commercial purposes without the prior written permission from WDO.
If you print off, copy or download any Materials in breach of the Conditions of Use, your right to use Our Website will cease immediately and you must, at Our option, return or destroy any copies of the Materials you have made.
World Duchenne Awareness Day logo –The World Duchenne Awareness Day logo, may not be used for commercial purposes, but only in support of activities related to World Duchenne Awareness Day. As the World Duchenne Awareness Day logo is a symbol of a joint community advocating for better lives of people living with dystrophinopathies, the logo can only be displayed in the spirit in which it was intended.
The logo, if used, should be used stand alone, in the format available on the Website. You may not alter the logo in any way such as by changing the design, colors or the proportions, or crop it or combine it within any other logo. In case it is not possible to use the correct colors due to technical limitations, you shall use the logo in black and white. Please read the style guide here.
8. Linking to our website
You may link to Our Website or to any of its pages without having to ask permission. However, you must do so in a way that is fair and legal and does not infringe Our rights in particular relating to Our logo, acronym and intellectual property rights.
A link should not be used for the promotion of any commercial products or services.
You must not establish a link in such a way as to suggest any form of association, approval or endorsement on Our part where none exists.
You must not establish a link to Our site in any website that is not owned by you.
9. No reliance on information
The Materials on Our Website are provided for general information and educational purpose only. It is not intended to amount to medical advice on which you should rely. We cannot respond to questions concerning the medical aspects of dystrophinopathies. We do not employ qualified medical personnel or information specialists to give medical advice, diagnosis, or offer referrals. You must obtain professional or specialist advice before taking, or refraining from, any action on the basis of the Materials on Our Website.
If you seek information on Duchenne and Becker muscular dystrophy, we recommend Users to visit the following website www.worldduchenne.org.
Please note that We may update Our Website from time to time, and may change the Material at any time. However, any of the Material on Our Website may be out of date at any given time, and We are under no obligation to update it. We do not guarantee that Our Website, or any Material on it, will be free from errors or omissions.
10. Applicable law and competent court
The Conditions of Use are governed by Dutch law only and shall be constructed accordingly. In case of disputes, only the Dutch courts shall have jurisdiction.
11. Changes to conditions of use
Any future changes We may make to Our the Conditions of Use will be posted on this page. Please always verify whether you have consulted the latest version of the Conditions of Use. Your continued use of Our Website constitutes your agreement to this Conditions of Use and any updates thereto.
These Conditions of Use were last modified and revised on May 2022.
Questions, comments and requests regarding these Conditions of Use are welcomed and should be addressed to at World Duchenne Organization, Landjuweel 34, 3905 PG Veenendaal, the Netherlands or [email protected]ne.org.