Story by Stavros

ΟΝΟΜΑΖΟΜΑΙ ΣΤΑΥΡΟΣ  , ΕΙΜΑΙ ΑΠΟ ΤΗΝ ΕΛΛΑΔΑ ΚΑΙ ΕΙΜΑΙ 7 ΧΡΟΝΩΝ. ΛΑΤΡΕΥΩ ΟΛΑ ΤΑ ΖΩΑΚΙΑ ΚΑΙ ΕΧΩ <<ΚΟΛΛΗΜΑ>>ΜΕ ΤΟΥΣ ΔΕΙΝΟΣΑΥΡΟΥΣ! ΜΟΥ ΑΡΕΣΕΙ ΝΑ ΚΟΛΥΜΠΑΩ ΣΤΗ ΘΑΛΑΣΣΑ ΜΕ ΤΗΝ ΑΔΕΛΦΗ ΜΟΥ ΚΑΙ ΤΟΝ ΚΑΛΥΤΕΡΟ ΦΙΛΟ ΜΟΥ ΤΟΝ ΕΡΜΗ! ΤΟ ΟΝΕΙΡΟ ΜΟΥ ΕΙΝΑΙ ΝΑ ΕΧΩ ΕΝΑ ΜΕΓΑΛΟ ΣΠΙΤΙ ΜΕ ΠΑΡΑ ΠΟΛΛΑ ΖΩΑΚΙΑ ΚΑΙ ΝΑ ΠΑΙΖΩ ΣΥΝΕΧΕΙΑ ΜΑΖΙ ΤΟΥΣ!


Hi, my name is Stavros, I am from Greece and I’m 7 years old. I love all animals and I am obsessed with dinosaurs. I love swimming with my two sisters and my friend Hermes. My dream is to have a big house with too many animals and continued to play with them.

Story by Florin Carciumaru

Numele meu este Carciumaru Florin si am saptesprezece ani. Locuiesc in Romania intr-un oras numit Pitesti si ce pot sa va spun este ca ea are peisaje frumoase,locuri istorice si monumente, inafara de asta ea deasemenea are multe manastiri. Daca doriti sa vizitati tara mea, pentru a stii despre natiunea mea,religie si obiceiuri, va rog veniti. Visul meu este sa fiu un programator IT in grafica, si deasemenea un tehnician IT, inafara de asta deasemenea vreau sa fiu un preot slujind la o manastire si sa termin facultatea de politehnica. Cand este weekend, imi place sa ma plimb afara o ora, prin jurul cartierului si deasemenea sa ma duc la sala, facand niste exercitii. Dupa ce fac asta, eu vin acasa si apoi citesc ceva sau ma joc niste jocuri pe computer cu prietenii mei online sau singur. Daca este ceva sa schimb in lume, este speranta la un viitor mai bun deoarece cand spui ,,Nu putem face nimic”, aceasta nu este adevarat. Nu politicienii schimba tara, ci oamenii care locuiesc in aceea tara. Ei doar asculta plangerile noastre apoi ei fac ceva cu ajutorul nostrum. Deci noi suntem puterea nu ei, si trebuie sa na ajutam reciproc, nu continuand sa fim prosti si sa mergem inainte pe cont propriu. Daca a-si putea invita trei prieteni cei mai buni, care vor fi varul meu, doi prieteni care I-am intalnit la un sanatoriu, noi am vorbi de fapt despre momentele noastre din ultimul timp,despre aspiratiile noastre si distractii si despre ultimele jocuri jucate si ultimele filme vazute. Unul dintre cea mai favorita experienta este cand am devenit un crestin responsabil. Aceia s-a intamplat cand mama mea a aflat despre boala mea cand aveam opt ani. Din acel moment, am inceput sa ne ducem la biserica in fiecare Duminica, apoi sa mergem la toate sarbatorile.Si eu pot sa ma spun ca este important sa mergem pe drumul lui Dumnezeu deoarece aceasta este singura fiinta care Ne tine in viata si in siguranta. Amintirea mea cea mai buna este cand am luat primul meu 10 la scoala la cursul meu favorit,Matematica.Aceasta s-a intamplat cand aveam unsprezece ani cand dadeam teza la Matematica. Amintirea mea cea mai amuzanta este cand ma jucam cu cainii mei de la tara, si le dadeam niste paine,dar acesti doi caini erau legati impreuna si se incaierau reciproc deoarece ei nu vroiau sa imparta mancarea. Cand ma trezesc de dimineata, mereu imi iau vitaminele si energia din mancarea mea care este mereu un suc de fructe (banane,portocale,grefe sau avocado), deasemenea un lapte de migdale cu cereale. Apoi ma duc la scoala, si dupa scoala, imi fac acasa temele si mereu imi fac exercitiile pentru a nu avansa boala.Cand sunt in vacanta, ma joc cu lucrurile mele sau scriu ceva.Deasemenea imi iau responsabilitatile ca crestin si ma rog in fiecare dimineata si noapte.Dupa ce fac toate acestea ma duc in pat si ma pregatesc pentru urmatoarea zi. Deoarece am fost interesat in ultimul timp cu tratamentul si sanatatea mea, m-am dus la presedintele asociatiei Duchenne din Romania,Isabela Tudorache si am aflat ce sa fac in continuare, si am facut niste analize despre sanatatea mea, si am vazut ca trebuie sa fac mai mult pentru a ma pastra bine, si deasemenea sa am grija de corpul meu, care este un pic mai gras. Maine, o sa fac exercitiile pe care doctorii mi-au aratat ieri, pentru a-mi remedia problemele si deasemenea o sa fac o plimbare pentru a ma pastra bine. Persoana mea cea mai favorita din jurul meu este fara indoiala mama mea deoarece ea m-a ajutat de la inceput, ea mi-a dat putere,curaj,cunoastere si puterea de a merge inainte cu tratamentul bolii mele. Aceasta este povestea mea, si imi doresc decat sa ma vindec de aceasta boala, deoarece nu-mi place sa fiu mai rau sau sa fim in scaun cu rotile. Daca cineva vrea sa ma ajute va rog faceti-o deoarece vreau sa fiu un om sanatos si sa merg oriunde fara frica.


My name is Florin Carciumaru and I am seventeen years old. I live in Pitesti, Romania. What I can tell you about my country is that it has beautiful landscapes, historical places and monuments; besides that it has many monasteries. If you want to visit my country, to get to know about our nation, religion and habits: please come. My dream is to become an IT programmer in Graphics, and an IT technician, besides that I also would like to be a priest serving at a monastery and to finish a polytechnic college. On the weekend I like to walk outside for an hour around the neighborhood, and to go to the gym. When I get home I read something or I play computer games with my friends online or alone. If I could change something in the world, it would be the hope for a better future, because when you say “There is nothing we can’t do”, this is not true. Not the politicians change a country, but the people who live in that country. They just listen to our complaints and then they do something with our help. So we have the power, and we must help each other, we must stop being stupid and move forward on our own. 

If I could invite my three best friends to dinner, it would be my cousin and two friends which I met in a sanatorium. We would talk about our aspirations and pastimes, and about our the games we played and the movies we watched. One of my most favorite experiences is when I was eight years old and I became a responsible Christian. That happened when my mother found out about my disease. From that moment, we began to go to church every Sunday and we went to all celebrations. I can tell you that it is important to move on God’s way, because He keeps us alive and safe. One of my best memories is when I was eleven years old and I got my first 10 at school for my favorite course, mathematics. Another funny experience happened when I was once playing with my dogs on the countryside and feeding them bread. The two dogs were bound together and they clashed on each other because they didn’t want to share their food. 

When I wake up in the morning, I always get my vitamins and energy from my food which is always a fruit juice (banana, orange, grapefruit or avocado), with almond milk and cereals. Then I go to school and after school I do my homework and my exercises. When I am on vacation, I play with my things or I write something. I also take my responsibilities as a Christian, I pray every morning and night. Lately I have become more interested in my treatment and my health, I went to Isabela Tudorache, the president of Parent Project Romania, and I found out what I to do further. I made some analyses about my health, I know now that I need to do more in order to stay good and I also need to take care of my body. Tomorrow I will do the exercises that the doctors showed me yesterday and I will go for a walk. My favorite person to have around me is undoubtedly my mom, because she helped me from the beginning, she has given me strength, courage, knowledge and the power to move forward with the treatment for my disease. This is my story, and I wish to cure from this disease, because I don’t like it to get worse or to have to go into a wheelchair. I want to be a healthy man and to go anywhere without fear.

Story by Franco Augustín Torrilla

Hola! Me llamo Franco Agustín Torrilla, cumplí 5 años en Abril, naci en la ciudad de Mar del Plata, provincia de Buenos Aires, Argentina hace dos años me mude con mis padres a la ciudad de Paraná provincia de Entre Ríos. Vivo con mis papás en el fondo de la casa de mis abuelos maternos. Todas las mañanas voy al jardín y por las tardes hago kinesiología, terapia ocupacional y fonoaudiología.

Las tardes de los martes y jueves son mis preferidas porque hago natación; en el agua me siento un “pececito” como me dicen los profesores. Desde febrero soy uno de los integrantes más pequeños de la escuela de natación adaptada “Chapuzón”, junto a mis compañeros y profes ya participe de dos torneos. Me encanta bailar… y también me gusta mucho pintar, para mi último cumpleaños mi madrina me regalo un atril, muchos pinceles de distintos tamaños, hojas y temperas, me gusta pintar escuchando música. Como naci en Mar del Plata, que es una ciudad balnearia, y crecí ahí hasta los tres años me gusta mucho jugar en la arena y meterme al mar, cuando podemos nos hacemos una escapadita con mis papis. Mi sueño es conocer Brasil.


Hello! My name is Franco Agustín Torrilla, I turned five in April. I was born in the city of Mar del Plata, Buenos Aires, Argentina. Two years ago I moved with my parents to the city of Parana in the province of Entre Rios. I live with my parents in the back of my grandparents house. Every morning I go to the garden and in the evenings I do kinesiology, occupational therapy and speech therapy. 

Tuesday and Thursday afternoons are my favorites because I swim; in the water I feel a “little fish” as my teachers are saying. Since February I’m one of the youngest members of the adapted swimming school “Dip”, together with my classmates and teachers I already participated in two tournaments. I love to dance … and I also like painting, for my last birthday my godmother gave me an easel, different sizes of brushes, leaves and temperas, I like to listen to music while I am painting. As I was born in Mar del Plata, a seaside resort, and lived there the first three years of my life, I really like to play on the beach and to swim in the sea. When we can we go on a short trip with my parents. My dream is to get to know Brazil.

Story by Dave Stam

Hi, Ik ben Dave 13 jaar en woon met mijn ouders en zusje in Rotterdam (Nederland). Ik ben gek op sport, kijk graag voetbal en ga soms een wedstrijd kijken van Feyenoord in de Kuip, waar ik erg van geniet. Zelf doe ik ook aan sport “Boccia”, dit is een paralympische sport, het is een bal/werp spel wat lijkt op Jeu des Boules, alleen met zachte ballen en je speelt het in een zaal. De sport is nog niet zo bekend, ik speel het nu 3 jaar en ben met een aantal clubgenoten geselecteerd om bij het talent team van het Nederlands Boccia Team te komen, zo zie je maar dat je met een handicap nog heel wat kunt bereiken, ook in sport.


Hi, I’m Dave, 13 years old; I live with my parent and little sister in Rotterdam in the Netherlands, I love sports and like to watch a match from Feyenoord in the Kuip stadium, I enjoy that very much. I am also doing a sport named ‘Boccia’ . This is a Paralympics sport, it’s like pétanque only with soft balls and played indoor. Boccia is still an unknown sport, I play it for 3 years now and with some team members I am selected for a talent team from the Dutch Boccia team. So you can see you can always achieve something with a handicap even in sports.

Story by Beschi Flaviu Florin

Numele meu este Beschi Flaviu Florin.Am 6 ani si sunt din Cluj,Romania.Stiu ca sunt persoane care viseaza sa zboare,sa urce Everestul ,sa paseasca pe Luna…Singurul meu vis este sa fiu ca si restul copiilor de langa mine.Am un singur vis si ma gandesc mereu la el..se numeste “speranta”.Daca as putea sa schimb ceva in lumea asta ar fii sa opresc timpul,Cel mai mare cosmar al meu este timpul care trece incet pe langa mine.


My name is Beschi Flaviu Florin. I am 6 years old and I live in Cluj, Romania. know that there are people who dream to fly, to climb the Everest, to walk on the moon….my only dream is to be like other children. I have one dream and I always think of it… it is called “hope”. If I could, I would stop time. My worst nightmare is time which is passing by slowly.

Story by Aldo Alejandro Jurgeit

Hola! Soy Aldo Alejandro Jurgeit, tengo 9 años, vivo en la ciudad de Quilmes, pcia d Bs As, Argentina, hemisferio sur del planeta tierra. Quiero contarles que mi día es exitoso cuando me divertí y aprendí cosas. Mi actividad favorita es reunirme con mi amigos! Y lo mejor es cuando hago “pijamadas” en mi casa porque nos quedamos despiertos hasta la madrugada. También me encanta pasear, leer, escribir historietas y dibujar! Si pudiera invitar a una cena mágica a tres personas, estas serían: mi mamá Celeste, mi papá Nacho (porque los amo) y José de San Martín (libertador de América).
En el día realizo muuuuchas actividades -me despierto 7 am, desayuno y tomo mi medicacion, voy contento a mi Colegio Eduardo Holmberg (alemán) de Quilmes, en el club hago gimnasia y natación, además cuatro terapias semanales (kinesiologia, fonoaudiologia, terapia ocupacional y psicología) y controles medicos en el hospital Garrahan- la verdad, todo esto me cansa un poco, pero lo hago desde muy chiquito, porque sé que me hace bien para mis músculos, mi salud!
También me canso cuando juego al fútbol por ejemplo, y lo resuelvo saliendo de la cancha a filmar el partido ó árbitro ó me siento a ver… ni loco me pierdo algo en mi vida q sea divertido!
La persona favorita que tengo a mi alrededor siempre, es mi abuela Nanci… ella me brinda mucho cariño, me cuida y hago lo que quiero en su casa ! Ahh me olvidaba de contarles que me encantan los perros y tengo tres! uno en mi casa dónde vivo con mi mamá, otro en la de mi papá y otro en la de mis abuelos!

Sueños? No tengo pensado ningún sueño…no quiero nada más! Soy feliz!

Chau, Aldo.

Story by Archie, George & Isaac

Hello our names are Archie, aged 9 and George & Isaac, aged 5 and we are three brothers from Ireland who have DMD. We love each other very much and love life. We have had a wonderful summer; we were in the UK for two weeks and it was great fun. We went to Lego land and Poultons Park and the sea Side – it was brilliant.

We are very lucky to live in an amazing community in the west of Ireland who are doing everything they can to help us raise awareness of DMD. We are hoping that a medicine can soon be found that will help every  child and adult living with the Disease.

Archie: I want my muscles to work properly as when I grow up I want to play Rugby for Ireland and be a drummer in a rock band.

George: I want the doctors to find a medicine for my silly muscles because when I grow up I want to be a Chef.

Isaac: My muscles are too slow! I want to run faster and faster! When I grow up I want to be a Bin Man!

Story by Joshua Lessop

Hello. I’m Joshua and I’m 6 years old. Mummy and Daddy adopted me when I was 3 but have taken care of me since I was only 8 weeks old as I was fostered. I love dinosaurs, sharks and Spiderman and watching Minions Movies.

We have been to lots of places to make happy memories together and just been to Australia where I went on a helicopter ride, fed kangaroos and stayed in the rainforest. I would love to have a house without stairs and a classic car for Daddy to drive me around in.

Story by Stan Eshuis

Hallo, ik ben Stan. Ik ben 4 jaar. Ik heb een zus en een vader en moeder. We wonen in Nederland, in een nieuw huis. We wonen hier nog niet zo heel lang. Maar ik vind het hier heel leuk. Mijn school is vlakbij, ik kan lopend naar school. Daar speel ik graag met mijn vriendjes. Dat vind ik heel gezellig. Ook vind ik het heel leuk om te fietsen. Dan zit ik in de bakfiets en gaan mijn moeder of vader heel hard. Dan voel ik de wind door mijn haren en ga ik lekker hard zingen.


Hello, I am Stan. I am 4 years old. I have a sister and a father and mother. We live in the Netherlands, in a new home. We came to live here not so long ago. But I like it here a lot. My school is close by and I can walk to school. I like to play with my friends. I enjoy spending time together. I also like to bike. Then I am in front of the carry-on bike and my mother or father go very fast. Then I feel the wind in my hair and I will sing very loud.

Story by Carlos López

Él es Carlos, pero le llaman “Nazo” y es un ejemplo de fortaleza para todos lo que lo rodean, porque pese a las adversidades de tener DMD ha logrado cumplir las metas que se ha propuesto , toda la fuerza que no tiene en sus músculos la tiene en su espíritu y su carácter. Él sueña sobre lo que aun quiere lograr para el futuro pero sin dejar de agradecer por las cosas que tiene y se mantiene positivo cuando hay tiempos difíciles.

Cuando niño su sueño era ser piloto de un avión , ahora su sueño es ver a su equipo de futbol “el Atlas” campeón pero todos le sugieren regresar a lo de ser piloto.

Carlos disfruta estar en el mar donde el agua es tranquila y cristalina. La música y el futbol son su pasión. Es vocalista de un grupo musical llamado “Los Big Boys”, grupo formado por chicos con DMD, que tienen las mismas ganas de vivir y salir adelante. Cantando él expresa su alegría y su amor sobre todo cuando le canta a Nayeli su amada esposa. Juntos hacen una pareja increíble en la que rompen las barreras físicas, demostrando que eso no es lo más importante para ser felices. Síganle es un trabajo en equipo!
Siempre estaremos agradecido s por enseñarnos a apreciar la vida desde otras perspectivas.


His name is Carlos, but by his friends call him “Nazo”. 
He is an example of strength to everyone around , because despite the adversities of having DMD he has achieved his goals, all the strength missing in his muscles is increased in his spirit and attitude. H e is always dreams about the future but he is still thankful for the things he has and he remains positive in difficult times. 

When he was a kid his dream was to become a pilot on his airplane, now his dream is to see his football team called “Atlas” to be the champion, but everybody suggest he rather back to the pilot dream. 

Carlos really enjoys getting in to the sea where the water is calm and crystal clear. Music and football are his passion. It is the first voice of the musical group called “The Big Boys”, a group of boys also with DMD, but with the same desire to live and thrive. When he sings he expresses joy and love especially when he sings to his beloved wife Nayeli. Together with her they make an incredible couple who break the physical barriers, demonstrating that, to be happy, these limitations are not an obstacle. 

We will always be thankful for teaching us to appreciate life from other perspectives.
Julia López