Hi my name is Leighton I’m 5 years olds , I’m from Liverpool UK, I have duchenne muscular dystrophy, I like to live my life to full and try anything once although I get tired easily sometimes. I love playing with my toys and on my iPad and going on family days out with my mummy, daddy and two sisters.. Hopefully one day soon there will be cure so I can carry on doing everything I enjoy in life..
Story by Ramón Freitas
fMy name Ramón Freitas, I’m 24 years old and I live in Rio de Janeiro, Brazil. I am a huge soccer fan, Flamengo is my favorite team. Years ago I was the first Power Soccer athlete in South America, now I play at “Novo Ser Power Soccer” team. This June I lived one of the best moments of my life playing the Libertadores Cup final game in Montevideo where we won first place.
Story by Pedro de Moraes Martinez
Sou Pedro de Moraes Martinez, 27 anos, jornalista, escritor e compositor. Moro em Campo Grande, Mato Grosso do Sul, Brasil. Fui diagnosticado aos 5 anos de idade. Apesar das dificuldades e obstáculos, vivo a vida intensamente. Gosto de esportes, filmes e música. Uso meus talentos para dar sentido a vida e coleciono momentos junto a minha família e meus amigos. Acredito que devemos lutar por nossa qualidade de vida e não desistir nunca de esperar a tão sonhada cura.
I am Pedro de Moraes Martinez , 27, journalist , writer and composer . I live in Campo Grande, Mato Grosso do Sul , Brazil . I was diagnosed at 5 years old. Despite the difficulties and obstacles, live life to the full. I like sports , movies and music . I use my talents to make sense of life and collect moments with my family and my friends. I believe we must fight for our quality of life and never give up waiting the long awaited cure.
Story by Wafic Zein
إسمي وفيق زين عمري ١٤ سنة، أعيش في لبنان أستخدم الكرسي المدولب منذ ٥ سنوات. أشكر الله لإنه منحني أماً رائعة وأب حنون. لدي أحلام كثيرة، أجملها أن أصبح مالك شركة سيارات، وأدعو الرب أن يساعدني لأحقق حلمي،لكن الرب يعلم ما هو الأفضل لي، هذا إيماني وهذا أنا. أحبكم جميعاً
My name is Wafic Zein and I am from Beirut, Lebanon. I’m 14 years old, I have been using the wheelchair since 7 years. I have a great mum and a tender dad. I have many dreams, one of them is to be a car dealer. I pray to God to help me reach my dream, but sure he knows what is best for me. That is my believe and that is me; love you all.
Story by Muhd Saifudeen
My name is Saifudeen and I have turned 18 this year. It was about 12 years ago when I was officially diagnosed with Duchenne muscular dystrophy. I was unable to run, walk fast or be independent. And finally, about 8 years ago, when I was 10 years old, I was wheel-chaired.
I have always wanted to be a police officer since young. The thought of protecting my country and my love one makes me feel very self-fulfilling. After completing my primary school education, I was home-schooled for several years. I often shy myself from crowds and preferred to stay alone almost all the time. My dreams, hope and ambitions shattered ever since.
About a year ago, I was invited by Muscular Dystrophy Association Singapore to attend their programmes. Initially I was sceptical but deep inside I really hate being the way I was. I decided to take one step forward and give myself a chance.
Today, I’m an active member of MDAS. I’m attending their BRIDGE programme, a customized learning session where I get to learn Math, and Tamil. I’m also learning illustrator course which excites me since I have always enjoyed designing. Above all, I was recently chosen to participate in the National Disability League for Boccia.
I have never in my life imagined that I have the chance to dream to live my life the way I want but today, I have accepted my illness and I’m living happily with my family and friends.
Story by Aldair Vizgarra
Hola!!!!!!!! Me llamo Aldair Vizgarra tengo 11 años Soy de Arrufo Provincia de Santa Fe Argentina Vivo Con mi mama Jaquelin y mi papa Walter y mi hermana Mayor Melody padesco la distrofia muscular de Duchenne . Voy a quinto grado me levanto alas 7 de la mañana Siempre miro mis horarios en mi carpeta para tener musica es la materia que mas me gusta por que canto y bailo, cuando ponen musica en los recreos me pongo a bailar y me rodean todos los chicos y chicas y bailan junto a mi , trato de “SONREIR ALA VIDA” a veces me siento mal por que no puedo hacer lo que los demas chicos hacen como correr, saltar, jugar ala futbol.
Voy los Lunes y Miercoles a rehabilitacion , ala hora de la siesta vienen mis mejores amigos que me acompañan siempre y nos ponemos a jugar ala computadora o mirar videos en youtube de Rubuis, Lucas Castel,Rap y nuestro favorito cantante “SKRILLEX”.
Mi sueño es : que haiga una cura contra mi enfermedad para salir adelante y mi otro sueño es conocer a skrillex y a los actores de star wars.
Como Soy? El chico Romantico y Facherito.
Story by Valentin Becker
Valentin est un petit garçon de 7 ans atteint de la myopathie de Duchenne c’est le troisième d’une fratrie de 4 que des filles!! . C’est un petit gars doux, calme mais aussi taquin. Son sourire pourvu de fossettes en fait craquer plus d’un ou une !!. Il adore les jeux vidéos ,les Pokémons, la nature la mer surtout et aussi les animaux dont il est bien entouré. Il est accompagné au quotidien par son chien d’assistance Ghus , un golden retriever de 4 ans .Il adore faire du tricycle mais aussi de l’équitation. Sur la photo il monte un poney shetland Lavande grâce à un module de selle appelé hippolib. A la rentrée Valentin rentre en Ce1, il fait un mi temps scolaire et est accompagné d’une AVS . Il adore apprendre , il est très curieux.
Story by Alex André Dorrego
Me llamo Alex André Dorrego. Tengo 8 años y tengo DMD, me lo detectaron cuando tenía 6. Soy simpático y mi sonrisa conquista corazones. Tengo dos hermanos con los que comparto uno de mis pasatiempos favoritos que es bailar. También me gusta mucho armar historias increíbles con mis muñecos y tengo una gran imaginación. A parte me gusta jugar con mis autos y camiones, disfrazarme e interpretar personajes. Siempre hago de abuelo. Lo que más me gusta es cocinar. No sólo en casa. En mi escuela especial hay talleres y uno de ellos es cocina. Ahí soy más que feliz, escucho con atención la receta, sigo todo paso a paso y disfruto preparando deliciosas comidas. ¡Me encantaría ser cocinero cuando sea grande!
My name is Alex André Dorrego. I am 8 years old and have DMD, I was diagnosed when I was 6 years old. I am sympathetic and with my smile I conquer other people´s hearts. I have two brothers with whom I share one of my favorite hobbies: dancing. I also like to tell amazing stories with my dolls and I have a great imagination. Besides this, I like playing with my cars and trucks, dressing up and playing characters. I always act like I am a grandfather. I like cooking at home and at school, as there are special workshops and one of them is kitchen. I really enjoy to listen carefully to the recipe, follow all the steps and enjoy preparing delicious meals. I would love to be a chef when I grow up!
Story by Jason Winslow
My Name is Jason Winslow and I am 8 years old. I live with my family in the Seychelles. I go to the International School Seychelles and will be going to year 3 after the summer holidays. I like school, swimming at the beach and zip lining. My dream is to go back to Sun City and swim in the Valley of the Waves because it looks like lots of fun and there are so many other things to do. I like to play on my PS4 because I am good at my games. I wish to be even happier because I just want to be happy all the time. I would love to have dinner with Darth Vader, star Trooper and Leia from the Star Wars Movie. My favorite experience was when I got to Dance with the Minions and my best memory is when we got to drive in a Nissan Almera in 2014 because it’s my favourite car. My girlfriend, Jessica, is my favorite person to have around. My day is a success when I have fun at school and play at home
Story by Wilson Ledesma
Soy Wilson Ledesma de General Pinedo, provincia del Chaco, tengo 30 años, nací el primero de Noviembre del año 1984. Soy profesor de inglés, escritor, abogado especializado en Derecho de Familia. Mi mejor recuerdo es cuando nos recibimos con mi mamá de abogados… tuve una gran cantidad de buenos sentimientos. Trabajo actualmente y desde hace más de tres años en el Juzgado de Paz de mi localidad. Me gusta compartir tiempo con mi familia en el lugar que sea, puesto que durante la semana con nuestras ocupaciones no nos vemos demasiado. Realmente mis personas favoritas son mi grupo familiar… Ver Los Simpsons, Cámara del Crimen cuando estoy solo o acompañado por alguien. Mi experiencia favorita es ir con mi familia a Talahuasi en Carlos Paz y la sigue siendo… ese lugar es un paraíso. Hoy me levanté a las cinco y media de la mañana, fui al juzgado desde las seis y media hasta la una, almorcé, tuve una pequeña siesta en la silla, estudié el nuevo código civil y comercial (para prepararme para rendir para juez de familia). Ayer hice lo mismo que hoy, cené a las 7, vi un rato televisión y a las 10 a la cama. Si Dios quiere mañana haré lo mismo que ayer y hoy J. Mi día es un éxito cuando me siento bien con Dios y conmigo mismo. Si pudiera cambiar algo en el mundo, lo acercaría a Dios. Cada vez se ven cosas peores; no hay amor, es todo dinero, sexo, libertinaje. Es difícil para el hombre reconocer algo superior pero por no hacerlo así estamos… Si pudiera invitar a una cena a tres personas serían mi abuela Lucia, mi abuelo Ledesma, por ser familiares queridos, a Santiago y a Teresita por ser grandes amigos. Me excedí en una… pero podemos hacer un lugarcito. Mi sueño es poder recuperar las fuerzas para tener más independencia y mejorar la calidad de vida tanto mía como de los que me rodean.
I am Wilson Ledesma from General Pinedo, The Province of Chaco, I was born on 1 November 1984 and I am 30 years old. I am an English teacher, writer, lawyer specialized in family law. My best memory is when I became a lawyer together with my mom… I had a lot of good feelings. Currently I am working for more than three years in the Magistrates Court in my town. Over the weekend I like spending time with my family, because with our jobs we do not see each other often during the week. When I am alone or with someone, I like to watch The Simpsons or Criminal Chamber. My favorite experience is to go with my family to Talahuasi in Carlos Paz and it still is… that place is like paradise. Today I got up at half past five, I went to the court at 6:30 to 1:00, had lunch, had a little nap in the chair, and I studied the new Civil and Commercial Code (to prepare myself to become a family court judge). Yesterday I did the same as today, I had dinner at 7, I watched television for a short while and at 10 I went to bed. If God wants, tomorrow I will do the same as yesterday and today. J My day is a success when I feel good and I feel good with God. If I could change something in the world, I would make it closer to God. Every time things get worse; there is no love, it’s all about money, sex, debauchery. It is difficult for man to recognize something bigger but since we are not doing so, the world is as it is. If I could invite three people to dinner it would be my grandmother Lucia, my grandfather Ledesma, as being family members, and James and Theresa for being great friends. It is one extra, but we could add another seat. My dream is to recover strength to become more independent and improve the quality of life for myself and the people around me.