Seth is a 9 year old boy with Duchenne Muscular Dystrophy. He is friendly, loves swimming and can build amazing projects with Legos. Like many boys, he also loves to play ball, any type of ball. Baseball is his favorite and as long as he can walk and play, he will do just that. While he is not as fast running bases and tires easily, he is gives it his best and loves every minute. He asked recently about not being able to walk and inquired what would he do if he could not throw a ball. Fortunately, thanks to the amazing work of PPMD and their vision, I witnessed a robotics demonstration and learned about many ways people are helping kids and adults with Duchenne do things they no longer have the ability to do. After explaining about these innovations, he was excited that his ball playing did not have to end. It would just need to be modified with robotic type devices. He would love a cure for DMD and prays for it nightly for himself and all the people affected by it. He also prayed for a dog for several years. Now he has his dog, Edison, who is his service animal and “brother.” He is pictured here with Edison. While he loses strength each day, he continues to fight DMD and never gives up. His parents are inspired daily by him and his smiles bring joy to their home.
Tell us about yourself.
My favorite color is green and I love to play baseball.
If you could change something in the world what would you change?
No School.
What is your best memory?
The trip to Give Kids the World.
(This was our Make a Wish Trip to Disneyworld. He said it was like paradise.)
What is your funniest memory?
We have tickle fights together as a family.
If you could invite any three people dead or alive to dinner who would that be?
Levi, Logan, and Talan.
(Funny- these are his best friends he has kept since daycare.)
My day is a success when… I have fun.
