Story by Mohamed Tayeb

Je suis Mohamed, j’ai 10 ans et je vis a m’sila dans l’est de l’Algérie. Je vais a l’école en compagnie de mon père parce que j’ai des difficultés a me déplacé tous seule, j’aime la nature et la mer. Mon plus grand souhait c’est que les chercheurs trouve un traitement pour guérir les malades du monde entier qui ont la Dystrophie Musculaire de Duchenne.


I’m Mohamed, I am 10 years old and I live in m’sila in easthern Algéria. My dad goes to school with me, because I have difficulties moving by myself. I love nature and the sea. My greatest wish is that researchers find a cure for patients worldwide who have Duchenne muscular dystrophy.

Story by Gianmario Fortunato

Mi chiamo Gianmario Fortunato ho 34 anni sono della provincia di Brescia. Ho la DMD diagnosticata all’ età di 6 anni, ho camminato fino a 11 anni. Ho due grandi sogni, il primo è una vita senza DMD se non per me almeno per i bambini che la hanno e per quelli che nasceranno, il secondo è quello di trovare l’amore puro, avere figli, una vita pseudo normale. Tutta la mia infanzia è stata meravigliosa nonostante la dmd e le esperienze preferite che ho vissuto, sono state avere fatto un giro in elicottero ed su una Ferrari F40 a 200 km/h, due esperienze con andrenalina pura. La mia visione delle cose mi porta a pensare che se potessi cambiare qualcosa nel mondo, cambierei la sensibilità delle persone. Vorrei un mondo come una volta, come quello dei nostri nonni, dove si viveva con le porte aperte e se un vicino aveva bisogno lo aiutavi . Vorrei un mondo dove la gente che non fa nulla per nessuno e parla male e critica per invidia, capisse il vero senso del silenzio della non critica ma solo collaborazione .. Vorrei un mondo con meno gente arrabbiata perché la vita è una sola!


My name is Gianmario Fortunato; I’m 34 and I live near Brescia, in Northern Italy. I was diagnosed with DMD when I was 6 and I was able to walk until the age of 11. My dream would be a life without DMD; if not for me, at least for little children who are being diagnosed now and for the ones still to be born. My other dream is to find my true love, to have kids, a pseudo-normal life. My childhood was amazing, in spite of my DMD and my favorite experiences in my life have been had a helicopter tour, and another time I had the chance to ride a Ferrari F40 at 240 km/hour – these were experiences filled with pure adrenaline. My vision of life leads me to think that if I could change something in the world, I would like to change people’s sensitivity. I’d like to live in a world more similar to our grandparents’ one, when people used to leave their doors open and to help one’s neighbor if he was in need. I’d like to live in a world in which people who usually don’t help others and criticize those who do that (out of envy for them) could understand the value of silence and collaboration and stop badmouthing other people. I would like people to live less angrily, because you only live once!

Story by Julián Gago

Me gustan mucho los animales del fondo del mar

Hola, soy Julián, tengo 4 años y el 1 de julio cumplo 5 años. Soy de la ciudad de 9 de Julio Pcia de Buenos Aires, Argentina. Vivo con mamá Mariana, papá Marcelo y mi hermanita Sara. Todos los días a la mañana voy al jardin de Infantes, allí me encuentro con mis compañeritos y mis seños, para jugar, aprender y divertirme. Por la tarde algunos dias voy a la kinesióloga y otros días a la fonoudióloga. Me gusta ir a la casa de mis abuelos a mirar películas animadas y que mi abuelo me arme castillos con los ladrillitos. Los fines de semana comparto juegos con mi hermanita, bailamos y nos abrazamos. Por la tarde salimos a pasear en familia. Mi color favorito es el naranja. Me gustan mucho los animales, sobre todo los del fondo del mar. También disfruto mucho cuando me leen cuentos.


Hi, I’m Julian, I am four years old and I will be turning 5 on July 1st. I’m from the city July 9, the province of Buenos Aires, Argentina. I live with my mom Mariana, my dad Marcelo and my little sister Sara. Every morning I go to the kindergarden, where I meet my classmates, to play, to learn and to have fun. In the afternoon I go to the physiotherapist and on other days to the speech therapist. I like to go to my grandparents’ house to watch nice movies and with to build castles out of bricks with my grandfather. In the weekend I play games with my sister, we dance and hug. In the afternoon we often go for a walk with the family. My favorite color is orange. I love animals, especially the ones that live on the bottom of the sea. I also enjoy when they read me stories.

Story by Michele Sanguine

Mi piace infatti recitare e fare imitazioni

Mi chiamo Michele Sanguine, ho 30 anni e vivo a Gallarate (Varese). Ho studiato Giurisprudenza e mi sono dedicato, nel periodo universitario, ad attività extra didattiche tra cui il teatro e programmi radiofonici. Mi piace stare all’aria aperta ed ascoltare musica. Sono una persona molto positiva e solare, ma a volte un po’ permalosa. Da piccolo speravo di diventare animatore turistico, mi piace infatti recitare e fare imitazioni.

Ora il mio sogno, per quanto impossibile, è creare una famiglia.

Ogni giorno mi sveglio alle 11 circa, mi preparano e, circa un’ora dopo bevo il mio solito latte e Nesquik. Aspettiamo che mi sorella torni da scuola per pranzare. Dopodichè mi riposo per circa 15 minuti e, sto al pc oppure al sole in giardino. Nel tardo pomeriggio esco con mia madre e spesso andiamo in giro per negozi di elettronica. Ceno e torno ad ascoltare musica.

Se potessi eliminare qualcosa dal mondo sarebbero l’odio, la violenza gratuita e il vandalismo mentre mi piacerebbe vivere in un mondo in cui non ci si sofferma all’apparenza delle cose e delle persone.

Il ricordo più bello che possiedo è l’evento Grand Prix Duchenne. Mi ha stupito la grande partecipazione (pensavamo di fare una gara tra qualche amico, ma in realtà più spiegavo quale fosse la mia idea più è stata supportata da amici e conoscenti). La gente si è affezionata a me ed è stato bello poter contare sull’aiuto dei veri amici, coloro che farebbero di tutto per aiutarti.

Il mio ricordo più divertente è una vacanza in un villaggio turistico dove ho partecipato ad uno spettacolo con mio padre che ora non c’è più. Io centavo una canzone imitando Louis Armstrong mentre mio padre raccontava una barzelletta.

Se potessi invitare a cena tre persone, anche non più in vita, sarebbero :
– Papa Francesco, perché adoro imitarlo
– Il signor Duchenne
– Elvis Presley, perché è da sempre uno dei miei cantanti preferiti sia per la bellezza delle sue canzoni, sia per il suo lato da latin lover


My name is Michele Sanguine, I am 30 and I live in Gallarate (close to the Milan area). I studied Law and, as a student, I spent a lot of time in activities such as a theater group and a collaboration with radio programs. I love being outdoors and listening to music. I’m a very positive and cheerful person, but I’m also a bit touchy sometimes. When I was a kid, I wanted to become a tourist resort entertainer, because I love acting and doing impersonations of celebrities. Now, my biggest wish is to create a family, although it is impossible.

Every day I wake up at 11h., I get prepared and, more or less an hour later, I drink my favourite milk and chocolate. We wait for my sister coming back from class, then we have lunch together. Then I have a 15 minutes nap and I browse the web or sunbathe in the garden. In the late afternoon I go out with my mother, and we often hang out in electronics shops. Then I have dinner and listen to some music.

If I could remove something from the world it will be gratuitous violence and vandalism, then I would like to live in a world where people look beyond appearances.

My best memory is the Grand Prix Duchenne event – an electric wheelchair race I organized recently, involving a group of Duchenne boys, on a big kart circuit. I was amazed by the great response we received, in terms of participants. At the beginning we had imagined we would be able to engage a few friends, but soon my idea captured the interest of friends and acquaintances, who started to support it. A lot of people grew fond of me. My greatest pleasure, though, was to know I could rely on my close friends, the ones who would do anything to help me.

My funniest memory took place during a holiday in a touristic resort where I joined a comic show with my father, who is not here anymore. I sang a song reproducing Louis Armstrong’s voice while my father told some jokes.

If you could invite any three people dead or alive to dinner would be:
– Papa Francesco, because I love impersonating him.
– Duchenne, because he discovered the disease.
– Elvis Presley, because he is my fauvorite singer and… because I could learn something from his “latin lover” experience.

Story by Khalil Profiti

Hola, soy Khalil Profiti de la ciudad de Mar del Plata, Argentina. Tengo 15 años,voy a 4° año de  la escuela secundaria,vivo con mis padres y mi hermano Etienne que también es portador de Distrofia Muscular de Duchenne como yo.
Me apasionan los coches, voy a todas las expo que puedo, leo sobre modelos nuevos y me encantan los clásicos. Colecciono junto a mi papá y mi hermano autos a escala,tengo una colección de mas de 400 autos en diferentes escalas,modelos y marcas.
Soy hincha de Boca y miro todos los partidos .
Hace 10 años que me atiendo por mi patología con la dra. Llilia Mesa y el Lic. José Corderí en la Fundación Favaloro en la ciudad de Buenos Aires,viajo para atenderme junto a mi familia 4 veces por año,y aca en Mar del Plata hago kinesiología 2 veces por semana y ejercicios también en mi casa con mi mamá y mi papá. Junto a mi familia nos encanta participar en todos los eventos que realiza ADM Argentina en la ciudad de Buenos Aires como charlas, Mostrarte,caminatas,etc.
Disfruto de mi ciudad todo el año y sobre todo en el verano en la playa!
Me gusta viajar, pasear, jugar a la Play,ir al cine,ir a la playa,estar con amigos,con mis primos y toda mi familia.
Saludos para todos desde Mar del Plata!!!

Story by Valentino Cepeda

Me llamo Valentino y tengo 3 años de edad. Mi cumpleaños es el día 10 de Mayo y soy del signo de Tauro. Vivo en la ciudad de Rio Tercero Provincia de Córdoba, Argentina. Vivo con mi mama María Luz y mi papa Fernando en un departamento chiquito pero confortable, lleno de alegría y felicidad. Me diagnosticaron Distrofia Muscular de Duchenne cuando tenía 1 año y medio, pero eso no me impidió a realizar mi vida con total normalidad. Todos los días voy a mis terapias donde trabajan conmigo personas muy buenas que me ayudan a mejorar mi calidad de vida. También voy a la guardería, estoy en salita de 3 años y tengo muchos amigos. Me gusta pintar, dibujar, jugar con mis juguetes y compartir juegos con otros niños. El fin de semana me gusta ir a la casa de mis abuelas que me dan mucho cariño y cosas ricas para comer. Los Domingos también salimos a pasear por la plaza. Cuando el clima esta agradable voy a la granja a montar en caballo y darle de comer a los otros animales. Si pudiera cambiar algo en el mundo serian 2 cosas, que no existiera ninguna enfermedad y que no hubiese desigualdad entre las personas.Si tuviera que invitar alguien a cenar, solo invitaría a 2 personas, a mi mama y a mi papa, ya que ellos me cuidan todos los días y me gustaría regalarles una cena. Mi mejor recuerdo fue cuando subí por primera vez a un caballo, tenía un poco de miedoporque era alto, pero después me gustó tanto que aún lo sigo haciendo. Mi recuerdo más divertido fue cuando comí helado por primera vez, me ensucie toda la cara y la ropa. Mi sueño seria tener un perro con el cual pueda jugar todos los días. También me gustaría tener un hermano o hermana, a la cual puede cuidar y disfrutar. Mis personas favoritas a mi lado son mis padres. Un día de éxito para mi es cuando me despierto y puedo respirar, sentir que estoy vivo, disfrutar de la brisa del aire que me acaricia la cara, escuchar a los pajaritos cantar arriba de los árboles. Un día de éxito para mi es poder abrir los ojos y ver a mis padres a mi lado luchando día a día, sin bajar los brazos, sin descansar un segundo y dando batalla a todas las adversidades.Un día de éxito para mi es estar tranquilo y saber que ellos siempre estarán cuando yo los necesite.


My name is Valentino and I have 3 years of age. My birthday is on May 10 and I am the sign of Taurus. I live in the city of Rio Tercero Cordoba Province, Argentina. I live with my mom and my dad Luz Maria Fernando in a tiny but cozy, full of joy and happiness department. I was diagnosed with Duchenne muscular dystrophy when he was 1 year and a half, but that did not stop me to make my life as normal. Every day I go to my therapies where very good people working with me to help me improve my quality of life. I also go to kindergarten, I’m sitting of 3 years and have many friends. I like to paint, draw, play with my toys and share games with other children. Over the weekend I like going to the house of my grandmothers who give me much affection and delicious things to eat. Sunday also went for a walk around the square. When the weather is nice I go to the farm to ride a horse and feed the other animals. If I could change anything in the world they would be 2 things that did not exist any disease and that there was inequality between people. If I had to invite someone to dinner, invite only 2 persons, my mom and dad because they take care of me every day and I would give them a dinner. My best memory was when I climbed for the first time a horse was a little scary because it was high, but then I liked it so much that even I still do. My funniest memory was when I ate ice cream for the first time, my whole face and dirty clothes. My dream would be to have a dog with which to playevery day. I would also like to have a brother or sister, which can care for and enjoy. My favorite people beside me are my parents.A successful day for me is when I wake up and I can breathe, feeling alive, enjoy the breeze air caressing my face, hear the birds singing above the trees. A successful day for me is to open your eyes and see my parents by my side fighting everyday without giving up, without resting a second and give battle all odds. A successful day for me is to stay calm and know that they will always be when I need them.

Story by Jack Johnson

I am a keen photographer

My name is Jack Johnson and I am seven years old. I live with my Dad, Mum and little brother in Wigan in the North of England. I enjoy running a bug collecting club at school with my friends and at the moment I am building a bug hotel in my back garden. I am a keen photographer and take pictures of the bugs I collect. In the summer holidays I am going to be doing some photography workshops.

If I could have dinner with three people dead or alive it would be my Great Grandad Arthur I miss him very much. He bought me my first gardening and bug collecting set. The Queen and The Prime Minister.

My dream is to one day build a life size spaceship out of lego and fly it to the moon.

Story by Kevin van Weverwijk

Ik zou willen dat er geen onweer meer is

Hoi! ik ben Kevin: een lieve, vrolijke en levenslustige kleuter van bijna 5 jaar oud. Ik woon samen met mijn broer, zusje en ouders in Nederland. Ik vind het geweldig om in het zand te spelen, te zwemmen, op ontdekkingstocht te gaan in de bossen en met andere kinderen buiten te spelen. Sinds vorig jaar ga ik naar school en ik heb het daar reuze naar mijn zin. Mijn favoriete vak is spelen in de hoeken. Als ik iets zou willen veranderen in de wereld is dat er geen ruzie meer is en belangrijk: geen onweer, daar ben ik een beetje bang voor… Mijn dag is geslaagd als ik plezier kan maken, spelletjes kan doen en veel kan knuffelen met de mensen waarvan ik hou. Mijn droom is om te kunnen springen – zo hoog mogelijk de lucht in!


Hi there! I am Kevin; a sweet and happy almost 5-year-old boy who loves to play outside. I live with my brother, sister and parents in the Netherlands. I love going into nature, playing with other kids, swimming and bicycling. I’d like going to school, play with my friends, read books, watch television, do lego, and play outside. If I could change something in the world, it would be no more fights and thunderstorms! My day is a success when have fun, can play and give hugs. My dream is to jump – high up in the air! I wish to have a wonderfull life with lots of love, joy and a good health!