Share your story for World Duchenne Awareness Day! At World Duchenne Awareness Day (WDAD) 2023, we are dedicated to raising awareness and breaking down barriers faced by people living with Duchenne and Becker MD (DMD/BMD). We believe that personal stories have the power to inspire, educate, and create positive change. That’s why we invite you to join us in sharing your own story. Together we can break barriers and make a difference.

By sharing your experiences and insights, you can help shed light on the unique challenges faced by individuals with DMD/BMD and offer valuable perspectives on how to create a more inclusive society. We encourage you to use the hashtag #DMDBreakingBarriers when sharing your story on social media, as it will allow your story to reach a wider audience and connect with others who may be going through similar experiences.

Share your story topics:

  1. Accessibility: Post a picture of yourself at a public space, such as a museum or park. Discuss your experience with accessibility. Share any challenges you faced and how they could be addressed to make the space more inclusive for people with disabilities.
  2. Inclusive Education: Share your experience with inclusive education, whether it’s attending a school that accommodates your needs or advocating for inclusive policies in education. Discuss how inclusive education can break down barriers for people with DMD/BMD and emphasize the importance of access to education for all.
  3. Community Engagement: Share your experience with community engagement and advocacy for people with disabilities. Discuss your involvement with advocacy organizations, events, or initiatives and the impact they have made in breaking down barriers and promoting inclusion. Encourage your followers to get involved and support disability advocacy efforts in their own communities.
  4. Friendship and relations: Post a picture of yourself with a dear friend of yours. Share creative strategies you’ve developed to strengthen friendships and relationships despite physical limitations.
  5. Access to care: Share your personal experience with accessing specialized medical care for Duchenne. Whether it’s finding the right healthcare providers or navigating healthcare systems, your story can encourage others to persist in seeking the best care possible.

Your story has the potential to inspire and educate others, creating a ripple effect of positive change.

To conclude

Let’s come together and share your story on World Duchenne Awareness Day. Aim to go beyond to break barriers, promote inclusivity, and create a more accessible world for individuals with DMD/BMD. Share your story and make a difference!

You can write your story and add photos, or record your experience. We’d love to hear from you. Publish your story in your own language or in English on social media with the hashtag #DMDBreakingBarriers.