One in 5000 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD)Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organizations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.

September 7 is World Duchenne Awareness Day. On this day we raise awareness for Duchenne and Becker muscular dystrophy around the globe. As every year, we have a special theme that deserves more attention. The official theme for this year will be announced on May 7. 

In the months before September 7, we will gradually release materials, tools and tips for raising awareness for Duchenne and Becker muscular dystrophy.