Hi my name is Dimitris I have two beautiful boys Hermes and Hector with my wife Omaira and we live in Athens, Greece. My older son Hermes has DMD.
What is your dream? My dream is my son’s generation to be the one that in their lifetime we eradicate Duchenne.
What do you like to do? When I find some free time, which isn’t very often, I like to take my family to the beach.
If you could change something in the world, what would you change? I would change the future of the rare diseases.
If you could invite any three people dead or alive to dinner who would that be? the ones that will find the cure for DMD
What was your favorite experience? From going down the Amazon on a boat to riding a bike at 300 kph, nothing was more exciting for me than being present at the births my two children.
What is your best memory? Their first smiles
What is your funniest memory? The expression on the face of my first son when he found out that he is not alone! My typical day starts s at 7am when I wake up and get Hermes ready for nursery before dropping him off. Then it’s straight into my email account where I will exchange messages, build contacts, talk to parent, discuss new information and trials, upcoming medical conferences and parent advocacy. I will take around 30-40 phone calls day from at home and overseas on a typical day for this purpose, then pick up my son around 3.30pm, more emails, more campaigning, stop for dinner, maybe take a final phone call or join a conference call around 10pm, then asleep at 2 or 3 am. If all the above happen I consider it a good day. The next day I do it all over again happily!
What will you do tomorrow? The same as what I will do today, but with a small change because we are driving three hours to jump on a boat and have a this weekend in Cyclades.
Who is your favorite person to have around you? My wife because she beautiful, kind, patient ( with me ) and very smart (says Omi 🙂 )who is checking what I am writing !!!!)
My day is a success when….my family is smiling and we are one step closer to cure DMD