One in 3,500 newborn boys in the world is affected by a rare and fatal disease: Duchenne muscular dystrophy. One in 3,500 might seem a drop in the ocean but including their family members, the daily lives of millions of people around the globe are affected. Duchenne Parents have set up organisations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.

Last year, the Duchenne Balloon was launched to raise awareness and money for education, and this year the campaign will be focused on Early Diagnosis programs: identifying and communicating early signs of Duchenne muscular dystrophy globally is the key to Early Diagnosis.

Pope Francis is with us on World Duchenne Awareness Day. It is the second year World Duchenne Awareness Day received the Patronage of the European Parliament.

 

Early Diagnosis in Duchenne Muscular Dystrophy

 

                 

 In 2015 World Duchenne Awareness Day received the patronage from EXPO Milano 2015. You can still read the interview with singer Noa and the photo blogs.