One in 5000 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organisations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.


What is Duchenne Muscular Dystrophy?


World Duchenne Awareness Day 2018

Standards of Care

This year the WDAD theme is Standards of Care. Everybody around the world will raise awareness and money through fundraising and sponsorship. This year the goal of our fundraising effort is to implement these Standards of Care globally in different ways. One of them will be through the development of educational videos. Education is the first step to implement good standards of care and make Duchenne dreams come true!

Pope Francis
World Duchenne Awareness Day 2018


World Duchenne Awareness Day 2017




World Duchenne Awareness Day 2016

Early Diagnosis


World Duchenne Awareness Day 2015