One in 3,500 newborn boys in the world is affected by a rare and fatal disease: Duchenne Muscular Dystrophy (DMD). Seems like a small group, but the 250.000 patients around the globe think big and have big dreams. Duchenne Parents have set up organisations in their countries, and all of them work day by day to guarantee access to care, to improve research, to educate patients and families.
Everybody around the world will raise awareness and money through Duchenne Balloon. This year the goal is to support a global e-learning platform on Duchenne Muscular Dystrophy: education is the first step to make the Duchenne Dreams come true!
What is Duchenne Muscular Dystrophy?
For the third year in a row, World Duchenne Awareness Day will be celebrated under the high patronage of the European Parliament
Pope Francis will also support
World Duchenne Awareness Day this year